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cerebellar ptosis
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cerebellar ptosis

Has anyone had the surgical procedure for cerebellar ptosis? Is a plate always used or is there another procedure?  How long is recovery and is it similar to the decompression surgery for chiari malformation?
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620923_tn?1405964489
Hi and welcome to the Chiari forum.

Most here may not be aware of that term, cerebellar ptosis, but brain slump , well a few more may know that one.This is a condition that occurs if too much bone is removed during a PFD...and allows the cerebellum to fall . Most drs do make a sling of sorts to hold it in place, and others use a titanium plate during the PFD to help avoid this.

I do believe it all depends on how large an area needs to be covered as to what they choose to use and it  will be the dr that makes the choice.

I know we had a few members with this issue, not sure how theirs were resolved.

May I ask who u dr is?....and has he suggested a plate?...what r ur concerns?


Glad to have u join our family here, sorry for the reason u had to seek us out.

"selma"
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620923_tn?1405964489
Hi and welcome to the Chiari forum.

Most here may not be aware of that term, cerebellar ptosis, but brain slump , well a few more may know that one.This is a condition that occurs if too much bone is removed during a PFD...and allows the cerebellum to fall . Most drs do make a sling of sorts to hold it in place, and others use a titanium plate during the PFD to help avoid this.

I do believe it all depends on how large an area needs to be covered as to what they choose to use and it  will be the dr that makes the choice.

I know we had a few members with this issue, not sure how theirs were resolved.

May I ask who u dr is?....and has he suggested a plate?...what r ur concerns?


Glad to have u join our family here, sorry for the reason u had to seek us out.

"selma"
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Avatar_n_tn
Thank you for the welcome and answering the question.  My doctor who performed the decompression and lamenectomy  surgery for Chiari Malformation was Dr. Oro in 2002.  I think it was an absolute success as I was symptom free until I was involved in a car accident.  I am currently seeing Dr. Di at the Cleveland Clinic who will perform the surgery for the brain slump.  I see him tomorrow and will have the surgery scheduled.  I am concerned about the recovery time and wondering if the 3 car accidents I've been in since my initial surgery could be the cause of the brain slump.  Getting hit by a car twice from behind, and a truck - side-swiped, could have caused the slump.  It's simple physics to me, but I understand most are sticking with the cause that too much skull was removed.
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620923_tn?1405964489
Hi...it does sound like the MVA's did play a part in this...3 since ur PFD?WOW....not a good thing. I know as a post PFD chiarian....there r activities we should avoid as they can cause us to re-herniate.....and a MVA can trigger a asymptomatic chiarian to bcome symptomatic.


Did u talk to Dr Oro about this?

The too much skull being removed is the more common cause, as I am sure there r MVA that case this too....once the dr has u open they can tell more what is the cause...I am doubtful Dr Oro removed too much bone....

We have a member that has an appointment this week for the same condition....we will be able to follow both of u as u recover from this procedure...but to date, I do not have a time line from neone on this to compare or give u indications of how long the recovery was.

"selma"

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