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chiara malformation type 1
closes city for sury to martinsburg w wva
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620923 tn?1452919248

  Hi and welcome to the Chiari forum.

I am not sure how close a Chiari specialist is to ur town, but I must say from my own experience it was better to travel to a true Chiari specialist then to deal with a NS that does the surgery....u need a Dr well experienced and aware of ALL related conditions.

See our list of Drs in the Health pages and see if u can find one close to u that knows Chiari.
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That is near me and unfortunately, the closest specialists are at UVA or in Maryland. I have sent my stuff to Dr Oldfields at UVA and working on getting it to NIH as well. If I fit into the study at NIH, all the treatment is free. Both are about 2 hour drive.
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620923 tn?1452919248

  We have had a few members get into the study, please keep us posted on what u end up doing and how u r doing : )
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