Aa
A
A
Close
Avatar universal
chiara malformation type 1
closes city for sury to martinsburg w wva
Cancel
3 Answers
Page 1 of 1
620923 tn?1452919248

  Hi and welcome to the Chiari forum.

I am not sure how close a Chiari specialist is to ur town, but I must say from my own experience it was better to travel to a true Chiari specialist then to deal with a NS that does the surgery....u need a Dr well experienced and aware of ALL related conditions.

See our list of Drs in the Health pages and see if u can find one close to u that knows Chiari.
Comment
Cancel
620923 tn?1452919248
Comment
Comment
Submit Comment
Avatar universal
That is near me and unfortunately, the closest specialists are at UVA or in Maryland. I have sent my stuff to Dr Oldfields at UVA and working on getting it to NIH as well. If I fit into the study at NIH, all the treatment is free. Both are about 2 hour drive.
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  We have had a few members get into the study, please keep us posted on what u end up doing and how u r doing : )
Comment
Cancel
620923 tn?1452919248
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Recent Activity
Avatar universal
Blank
zomblvr uploaded new photos
May 22
Avatar universal
Blank
zomblvr joined this community
Welcome them!
May 22
Avatar universal
Blank
Ball123 commented on The more intense you ...
May 22
Top Neurology Answerers
Chiari Malformation Community Resources