After my last MRI report stated that I had Chiari 1.5, I did some researching. With Chiari 2, not only does your tonsils herniate but your brain stem drops as well and you have spina bifida. I have the first two but not the second.
I have seen another neurolgist to see if he could help me or at least point me in the right direction. With my insurance, I can only see someone in my own state (ky). I asked him about the Chiari 1.5 and he informed me that there is no such thing and that it was a typo. I asked him how could it be a typo? The report is from two different doctors and it's in the paperwork 3 different times. He wouldn't even look at the MRI.
I went to my family doctor to see if he would refer me to another dr. He told me honestly that I probably knew more about my condition than he did, but he told me that we'd try to go a different route and go to UK in Lexington.
Sometimes I just feel like it's hopeless. It's so frustrating dealing with this mess. I mean there are whole institutes dealing with Chiari! Why are all these other doctors sitting in the dark? I would kinda understand if it was so rare that only like 1 in a million people had it, but there are alot of us out there. Why are these doctors not more knowledgable about this?
I feel like just screaming sometimes but goodness I would regret it!
AAAHHHHHHHHHHHHHHHHHHHHHHHH!!!!!!!! There alittle better :)
Here's a pic of my MRI.
Thanks for reading me spouting off :o)
crissy