Chiari Malformation Community
chiari and benign neoplasm of sphenoid sinus
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

chiari and benign neoplasm of sphenoid sinus

In early February 2013 my daughter 17 years was diagnosed with Chiari with cerebrel tonsils extending 16mm past FM, an obstruction of CSF flow, and a Syrinx that measures 6 mm at the C2 vertabrae. Doctors have said she can wait until school is out in June for decompression surgery. Also at this time a nasal polyp or cyst was noticed. Yesterday we went to the Ent at a childrens hospital and he confirmed a cyst not polyp located in right sphenoid sinus. On paperwork diagnosis states benign neoplasm of sphenoid sinus. surgery to remove this is scheduled for mid April. Right Sphenoid FESS is the name of the surgery.I have been trying to find information regarding this and have been pretty much unsuccessful. One thing I have found is that the Sphenoid sinus is located near the skull base and also read something about the fluids around brain, Is this related to Chiari?? The ent also mentioned or asked if she has had any sleep tests or been diagnosed with sleep apnea.?????????????? Along with this post I have a call into her neurosurgeon for his response.
620923_tn?1439824912

  Hi and welcome to the Chiari forum.

It seems so many issues are linked to Chiari as it affects our control center and the over crowding is all in the same space as these other organs, sinus, pituitary glad, etc can be affected by the excess CSF that builds.

Sleep apnea is something we ALL need to have ruled out....it  affects many with Chiari.

Those with Chiari are prone to auto immune conditions like Hashimoto's thyroiditis, and connective tissue disorders like Ehlers-Danlos...so we should rule these out as well.

  Having some of these related conditions can affect how one feels and heals after surgery so, u should find out pre surgery if these are underlying conditions.
Blank
Post a Comment
To
Recent Activity
Avatar_n_tn
Blank
AlissiaBreitenstein commented on 7 Tips to Breathe Bet...
1 hr ago
620923_tn?1439824912
Blank
selmaS September is Chiari Awarene... Comment
12 hrs ago
620923_tn?1439824912
Blank
selmaS commented on soccero's status
13 hrs ago
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
7489440_tn?1422931913
Blank
kwalker0004
Pocomoke, MD
979826_tn?1389039958
Blank
soccero
germantown, MD
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
7489440_tn?1422931913
Blank
kwalker0004
Pocomoke, MD
979826_tn?1389039958
Blank
soccero
germantown, MD