1759188 tn?1324681908
color purple
  i just wanted to share this with all of you....   i have been wearing purple finger nail polish for about 4 months now,  i have been asked numerous times why i don't change the color, my answer,   "it is the chiari malformation color "  wow do i get strange looks !!  lol  i think i have made so many people aware of chiari because of my toes and fingers
Cancel
10 Answers
Page 1 of 1
1903798 tn?1333908888
:) opi has a purple called purple for a purpose ... Love it
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  Ne thing we can do to raise awareness is great !! Thanks for sharing : )
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1827123 tn?1383868876
have had my toes done purple for a long time now, I dont wear it on my fingers...I wear it off too fast!  My girls are great at coming up with new designs for them.  I have to try to find the OPI color, my small town doesnt seem to carry it - guess I'll order it.   I had my ribbon on Friday and was at the bank. ONe of the bankers greeted me (she was wearing a purple blouse) and asked me if my ribbon was for suicide prevention?  I blankly stared at her for a moment and stated no, it was for chiari - a neurological disorder....which she returned with a dazed stare and finally said Oh, have a nice day.  Does everything fall under the "purple" awareness color?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1903798 tn?1333908888
Alzheimer's, add, chrones, Cystic fibrosis, eating disorders, epilepsy, fibro, lupus, some cancers, sarcoidosis, pulmonary are just a few there is a lot if you google purple ribbon you will find a list:)
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1759188 tn?1324681908
  or purple is for Chiari
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1759188 tn?1324681908
  anything we can do to raise awareness to chiari
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  There is the 5th annual Walk for Chiari this Sat.....our color is purple, and yeah we share it with other conditions but we have a zipper added to our ribbon......

  I always ask in a prayer thread we all wear purple for the member having surgery, to show awareness for chiari and show support for the person having surgery...if we wear purple enuff  we may get asked y?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1759188 tn?1324681908
  selma where is the walk ?  i love the zipper comment  
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  There is a link that u can go to and look for an area near u, I think the closest is an hour away for me....nothing I can get to....'

We all consider ourselves Zipperheads post op....and we have a thread to post when u r newly Zipped.


I will look to see where the thread got to with the walk info, but u can also look for it using the search this community feature.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  Here is the link to last yrs...I am sure u will be able to find this yrs info from this.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Recent Activity
Avatar m tn
Blank
Ball123 commented on photo
Aug 26
Avatar m tn
Blank
Ball123 commented on photo
Aug 26
Avatar n tn
Blank
Antere added the Exercise Tracker
Aug 26
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
1306714 tn?1327260680
Blank
muskegon, MI
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
979826 tn?1389039958
Blank
germantown, MD
Avatar universal
Blank
Chiari Malformation Community Resources