Chiari Malformation Community
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color purple

  i just wanted to share this with all of you....   i have been wearing purple finger nail polish for about 4 months now,  i have been asked numerous times why i don't change the color, my answer,   "it is the chiari malformation color "  wow do i get strange looks !!  lol  i think i have made so many people aware of chiari because of my toes and fingers
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:) opi has a purple called purple for a purpose ... Love it
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  Ne thing we can do to raise awareness is great !! Thanks for sharing : )
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have had my toes done purple for a long time now, I dont wear it on my fingers...I wear it off too fast!  My girls are great at coming up with new designs for them.  I have to try to find the OPI color, my small town doesnt seem to carry it - guess I'll order it.   I had my ribbon on Friday and was at the bank. ONe of the bankers greeted me (she was wearing a purple blouse) and asked me if my ribbon was for suicide prevention?  I blankly stared at her for a moment and stated no, it was for chiari - a neurological disorder....which she returned with a dazed stare and finally said Oh, have a nice day.  Does everything fall under the "purple" awareness color?
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Alzheimer's, add, chrones, Cystic fibrosis, eating disorders, epilepsy, fibro, lupus, some cancers, sarcoidosis, pulmonary are just a few there is a lot if you google purple ribbon you will find a list:)
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1759188_tn?1324681908
  or purple is for Chiari
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  anything we can do to raise awareness to chiari
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  There is the 5th annual Walk for Chiari this Sat.....our color is purple, and yeah we share it with other conditions but we have a zipper added to our ribbon......

  I always ask in a prayer thread we all wear purple for the member having surgery, to show awareness for chiari and show support for the person having surgery...if we wear purple enuff  we may get asked y?
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  selma where is the walk ?  i love the zipper comment  
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  There is a link that u can go to and look for an area near u, I think the closest is an hour away for me....nothing I can get to....'

We all consider ourselves Zipperheads post op....and we have a thread to post when u r newly Zipped.


I will look to see where the thread got to with the walk info, but u can also look for it using the search this community feature.
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  Here is the link to last yrs...I am sure u will be able to find this yrs info from this.
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