This is my 1st post , I have Chiari Malformation type 1 and cervical syringmyelia. I am due to have surgery on 21st March and am scared to death!!, I am finding that when I wake in the morning now that my arms are "dead" and heavy, when I move my finger the feeling returns, I also have a cape like ache across the base of my neck and shoulders, I am also loosing my grip on occassions, is this normal? , also can anyone tell me what to expect after the surgery?
I know exactely what u mean by dead arms...i had it for years without knowing it is sth to worry about...how many times i woke up thinking they cut off my arm or they died.the things u r mention are not normal in general,but here in the chiari family they are quite common.the surgery outcome is different for everyone...it can stop progress and in the best case it reliefs u from ur symptoms.
Welcome to our forum. It's a nice forum to come to for information, support and understanding. It is scary heading into this surgery, but having positive thougts help. Look forward to the day after you have surgery and hope you don't have heavy arm's anymore. As for any of our surgeries you will hear a lot of different stroies and journey's because we all heal so differently. For me I am now 17 mths post op and had to go through more surgeries due to my own respond to surgery, but I am very grateful for the outcome. The issues don't go away for some of us, but life does get better. We are here for you through your journey and alway's remember your not alone.
Welcome to our Chairian world. :)
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