Chiari Malformation Community
do i have chiari?
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

do i have chiari?

8779397?1359165050
do you see any chiari?
3 Comments Post a Comment
Blank
620923_tn?1413427272

Hi and welcome to the Chiari forum.

We r not medical professionals, and those u may see may not be Chiari specialists so do some research and find a Dr that is well informed and experienced with Chiari and Chiari related conditions.

It is possible that u have Chiari 0, but u will need a CINE MRI to see if u have a CSF obstruction. I do not see a syrinx in the cervical spine, but they can form in the thoracic and lumbar spine as well,

There r related conditions that can also cause symptoms similar to Chiari, so do have them ruled out as well. Ehlers-Danlos, syringomyelia, tethered cord....ICP, POTS, sleep apnea...disk issues...vitamin and mineral levels, and thyroid levels.
Blank
Avatar_f_tn
thanks for such a quick response.  i can't afford any tests.  everything i am getting done is through the free clinic.  i had been waiting to see a neurologist and when i finally did she just blew me off.  i have a pannus formation on my odontoid and i fear that it is causing csf blockage at times.  the neuro told me that was impossible.  its tough being in a situation with no money, no insurance and at the mercy of people who are only seeing you to get some of their college loans forgiven.  (not all of them but most of them)
Blank
620923_tn?1413427272

  There are clinical trials for Chiari ...we have links, use the search this community and type in clinical trials....then u can look to see if u fit the criteria they r looking for?

A pannus on the odontoid could be causing u some issue, do u know if the odontoid is retroflexed too? It could be y it developed a pannus.....?

There r many Drs be it a PCP, NL or NS that have no idea how chiari can and does affect us....keep pushing for answers.
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
Avatar_f_tn
Blank
awesomesauce33 commented on Body Builders, Kidney...
Oct 21
Avatar_f_tn
Blank
ihatechiair added the Pain Tracker
Oct 21
Avatar_f_tn
Blank
ihatechiair joined this community
Welcome them!
Oct 20
Top Neurology Answerers
620923_tn?1413427272
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
7489440_tn?1392096009
Blank
kwalker0004
Pocomoke, MD
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
Chiari Malformation Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1413427272
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
7489440_tn?1392096009
Blank
kwalker0004
Pocomoke, MD
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany