Not speaking from experience, but I just read a couple hours ago on another site that it's one of the best in the country.
Did a phone interview yesterday and was told that I'd be seeing Dr Bohinski once they receive my mri results.
I was diagnosed with chiari malformation, syringomyelia and scoliosis 6 years ago after unexplainable falls. The falls never stopped. Surgery wasn't recommended and no ongoing care was given. I was told that a 7 mm herniation didn't need treatment. 2nd opinion, same thing. Problem is, no matter what their opinion is, 6 years later and I'm still having these falls several times a week. After suffering a concussion last month from one of the drop attacks, my new family physician suggested we open this door again and see what comes of it.
So, here I am nervously awaiting the opinion of Dr Bohinski at Mayfield Chiari Center.
The problem is sounds like u have been seen by Drs that do not know chiari or how it can affect us regardless of the size of the herniation....U should be given a CINE MRI to see if u have overcrowding since u have a syrinx already that is usually y many of us have surgery to prevent the onset of one....the longer a syrinx is left untreated it can cause perm nerve damage....so, I am glad u will be seen by a Dr that knows chiari....
When I had the 2nd opinion, I figured there's truly nothing that could be done.So I just live with it doing the best I can. But it has become a lot more difficult. I recently started working. Love the job, but I wonder how much longer I can go on like this. I worry about having a drop attack on the job (the embarrassment, possible injury or even losing the job).
I'm praying this doctor considers absolutely everything and takes me seriously. I have a little to care for, a family a job. I am also a teacher's aid, serve in the food pantry, served in hurricane Katrina relief and would to serve on more missions but I feel like chiari malformation is holding me back.
I was also told that,if by chance I shouldn't have the surgery, they wouldn't just leave me hanging like the other doctors but would have leads on nonsurgical treatment.
I'm praying that the trip there is worth it and that God guides Dr. Bohinski in his decision making and any treatment I receive from him.
By the way, just want to let you know that I am thankful for this online community you have. Thanks. And yes I will keep you posted
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