I haven't been on here in a few weeks because the more research i do, the more horrified i am. I finally got an appt at the chairi institute(in long island) on Friday. I am so happy and scared out of my mind at the same time. I just want this all to be over with, but i know that this is really just the beginning. Im scared that i will need surgery. Im scared that i won't need surgery and there won't be anything that they can do. Im concerned with The amount of money this will all cost since they are out of network for.my insurance. Anyone have any advice.
I am wishing you the best on Fri. I know it is scary to have this appt, but as Selma said take a deep breath and know at least on Fri you will at least be a little closer to getting answers. I'll be thinking of you on Fri and hoping you will get the answers you need. I suggest making a list of questions so when you go you will make sure they get answers.
I do take things one day at a time. It keeps me sane! I try to deal with things as they happen. You cannot change the outcomes of anything by worrying, so let those things go until you need to handle them. Letting go is a tricky concept to learn, but it relieves stress and anxiety!
Good luck at your appointment!
I am in the same place! I was just told today I have chiari malformation and have to get a test on Monday and then see Neurosurgeon on Friday. I am also freaked out about what all of this means. Have you had other health problems? I had spine fusion in Feb 2012 and a total joint replacement of my Jaw in Dec 2011 and now this!
great u have a diagnose at the end and u know whats going on, although it is absolutely no good news...but running around feeling like u r going insane is definetly not good neither. Good luck and keep us posted
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