CHIARI MALFORMATION COMMUNITY
got a copy of my cine mri

got a copy of my cine mri

does anybody know how  to read them?!  lol! I was told the report would be ready today, but i would not be able to get a copy until the end of the week.  seeing them and not knowing what to look for is driving me crazy!!
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Hi E
Is it a verbal report or do you just have the scans?
Ray
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Ray, she is trying to read the scans.....I told her not to try...lol.....she will not listen....
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just the scans....cool to look at, but not sure what it is that i am looking at!!!  lol!  and i cna't listen!  it's driving me insane to have them in my grubby little paws and not know how to desifer them!!!
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Lizzy, just put them away....I did....I never even tried to look at mine.......to frustrating...
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lol!  selma, as a chiarian, i have frustration as a daily appetizer!
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lol...Lizzy we all do, but u r taking a second helping....lol.....
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oink oink!!!!  it's driving me nuts!!!!!!!!!
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bcuz u r letting it...find something else to do......pick on Ray....lol....sorry Ray.....
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uuuuuuhhhhh...he's trying to help me figure it out!!!  lol!!!
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has no one seen their own cine or is no one online right now?
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Ray is helping u???,.....hmmmmmm
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Do I hear my name being spoken in vane hummmm

You don’t have crowding Elizabeth, no brain no OC…LMAO!!!

Is that what yo want mom
On a serous note….will it make a difference if you see the scans….it aint going to change anything.


if you cant read them anyway. Go look at telly tubes or barney or something. much more fun!!!!
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No, Ray....just surprised is all...I thought she should walk away from this since it was diving her nutz.....but, do what u will.......lol
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i've been abandoned....  :(
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with palitable sorrow reflecting in the beautiful blue pool of her eyes, she gazes into the distance.  she is alone again.  on an endless journey to find the truth.  for she knows that with truth, knowledge will come.  slowly, cautiously and without a word, she turns and heads down a path less traveled.  few have been there before her, yet she can see footprints in the sand beside her....and knows she is not alone.  and when the time is right, true knowledge will come.
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can i get an AAAAAAAAAAMMMMMMEEEENNNNN!!!!!!!!!!???????????
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...LMAO...lol....yeah when u hear from the dr...lol.....
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if i have to wait for him, i will most surely be in the nut hut!!!
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In the humble opinion of me that is long overdue lol!!!!
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weeeeeee u 2 r something else.......
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They are a good band though.....U2, Irish 2, lol!!!
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ok....Bono.....
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she sighs the softest of sighs as she shakes her head slowly from side to side...golden blonde curls bouncing softly to life with each shake making her words seem even more sincere...with an upward pitch to here precious dimpled skin and her fair skin flushing so as to give the appearance of a severe sunburn, she exclaimed in a voice too strong for her young years, "mother, you need to do something about ray.  he is trying to provoke me and quite frankly, i'm appalled at your lack of parental intervention"!  with that, she abruptly turns on one heal of her tiny little foot and with her hands planted firmly on her hips, she added as she glanced at him over a taunt, high held shoulder, "as for you, i shall hear no more.  be gone, oh troubled child, be gone"! and into the night she stomped with her pride and dignity intact.
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OMG She has verbal  diarrhoea again she has been in the dictionary…..MOM Elizabeth is sniffing the dictionary again,
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Are right u two...what started  this.....Lizzy u get back here right now and lets get this sorted out...Ray, enuff.....
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i shall not dignify that comment with a response.  Mother, it's past the babys bed time.  i'm going out.  FOR A HOT FUDGE BROWNIE SUNDAE!!!  good night, wee lep!
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hey u.....who said u could go out???
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Talk about the pot calling the kettle black huh mom….tis she is the baby….cry baby…LMAO…..
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SOOOOOOOOORY MOM
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I asked a question...what started all this....Lizzy...did u hear me? where do u think u r going......young lady.....

Ray, I said hush.....
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you did!  yesterday you said i could go tonight...then she turns towards her mother and on her face the fear and confusion are apparent immediatly. her eyes widen as she looks lovingly at her dear mothers face.  slowly she crosses the room and lays one tiny, sweet hand upon the cheek of the woman she loves most in this world.  Mommy, are you ok?  her lower lip trembles slightly as she leans into the waiting arms of her beloved mother.  her mother embraces her and softly strokes the blonde curls of her little angel...there, there now precious one....of course i'm ok!  it's just that sometimes i tend to forget things.  cupping a hand under the chin of her sweet little girl she says, "but i know you will always remind me of things i forget, so we will be just fine.  now you run on to the ice cream palor and enjoy your sundae...here's $5.  it's on me this time"!  with a hug and kiss for her dear mother, she heads towards the front door.  as she passes her little brother with a lere she whispers from the corner of her mouth...your such an idiot!  haven't you figured out how to play the chiari game yet"?
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Oh ...Lizzy....one minute....Ray is going with u.....
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little angel.... blonde culs....bah
i dont want yucky ice cream anyway, mom said this is bad for ya, make your dumb...as is things are stacked aginst you when you have blonde culs, you get brain freeze and brain frog assuming u got a brain that is ..lol

I like am full after the yummy dinn dinn that mom prepared earlier.

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but before her mothers words could be heard, she was out the door and around the corner....smiling bigger than ever before because she had bet her little brother at his own game.  AND she could get the triple hot fudge brownie sundae since HE wasn't tagging along with her!
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hhhmmm...jealous much you simple little green boy?
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you are soooooooogood mom

boo....did i scare you...Look out be hind you sis….here I am….
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stomping her feet together with hands on her hips she glares down into the face of the little leprechaun   fine, she states difiantly.  you can come.  you can get whatever you want with the change i don't use....deal?
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Ray.......r u sure u didn't want  some Ice cream...u could go down......or mayb u would like to go to the hobbie shop and get a model air plane???
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Could I get a bat mom…..please….. or a poison snake…..I will put it in tizzy’s room

Leprechaun is that what you would be going and calling me so begorra, may the road rise up to meat you.
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Ray...that isn't nice...I said a model airplane...something like that, no bats...and no pet store either.....
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Soooooory mom……what is a…a…model airplane…..
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and the wind will kiss my cheeks in flight!  lol!
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it is a toy u build and they it actually flies.....


what did u say Lizzy??.......
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Mommy can I just come sit in your lap and cry???
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it was in response to rays comment.  and i shared my ice cream money with him, mommy.
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I am confused, what did u mean by that.....

what's wrong Shannon?
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just really bad night! People are being hateful so I came heree where I knew I had friends!
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what people r being hateful......sorry u r having a bad night.....
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The Irish attempt on Mount Everest was a valiant effort, but it failed: They ran out of scaffolding.
hi shannon.....Elizabeth just called me "a little green man" booo hoooo
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Sorry I didn't mean to ruin everybody's fun!
My family mama

Lizzy I would help you with your scans but since I'm the baby I can't read! haha
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funny Ray......about the scaffolding......lol.....
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ray, I luv ya but don't call her a DB and she won't call you a little green man!
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wh wh....whats a toy non?

An Irish man walks into a pub. The bartender asks him, "what'll you have?"
The man says, "Give me three pints of Guinness please."
So the bartender brings him three pints and the man proceeds to alternately sip one, then the other, then the third until they're gone. He then orders three more.
The bartender says, "Sir, I know you like them cold. You don't have to order three at a time. I can keep an eye on it and when you get low I'll bring you a fresh cold one."
The man says, "You don't understand. I have two brothers, one in Australia and one in the States. We made a vow to each other that every Saturday night we'd still drink together. So right now, my brothers have three Guinness Stouts too, and we're drinking together.
The bartender thought that was a wonderful tradition.
Every week the man came in and ordered three beers. Then one week he came in and ordered only two. He drank them and then ordered two more.
The bartender said to him, "I know what your tradition is, and I'd just like to say that I'm sorry that one of your brothers died."
The man said, "Oh, me brothers are fine----I just quit drinking."

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...ur family?....being mean to u?....how?


Ray, it is time for bed...get going...u should have gone quite some time ago.....
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LOL ray!
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cause they don't understand this stupid disease!!! Things are said that really hurt but I can't get them to understand!
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very funny Ray...but it is still way past ur bedtime....lol....
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I am sorry Shannon...all u can do is print off info on teh condition and let them read it...or let them see this forum....



Lizzy, where r u??/
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Ray.... If you don't mind mama you won't get anymore chocolate!

Oh wait nevermind..... that means more for meeee!
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Sadly we cant change what other think or how they understand us….I get that too S it is soooo frustrating…
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no more sweets tonight...everyone needs to get ready for bed...where is Lizzy....Lizzy...where r u,......did she go to bed.....
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Yeah, I know I had it with co-workers and my family until I told them exactly what was going on......I am not sure they understand 100%, but it is much better.


Ray, did u see Lizzy??.......Lizzy......Lizzy......
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sweets sweets SWEETS .....where....why did ye no call me MOM explain yourself
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Bed???? Mama its 9:20p.m. for me!
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U were told u could choose...Ice cream or the hobbie shop ...u said u didn't want ice cream......don't u remember???


Now I asked u...where is Lizzy?
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Ray I have some chocolate hidden but Shhhh..... don't tell Mom!
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No I don’t member I got brain drain….lol…
Ya mom it is only 9:65pm here….
whe...where is tizzy....dont trust her...lol
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Mama is Lizzy mad at me??? *sniffle sniffle* As soon as I got on she quit talking
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Lizzy had a long day today...getting her CINE MRI done and then the drive home......

it could be she dozed off...I am sure if we r quiet...mayb Ray will be able to sleep as well....I know I am having a time of it keeping my eyes open......

Ray, that is not the correct time.....look again....
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Well at least I'm not as upset as earlier if ya'll go to bed but I know you gotta sleep!
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I am glad u feel better......Ray...r u going to try and get some sleep??

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0k Mom.....it is 9:70PM

Hush Shannon dont tell any one TIZZY may hear...
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.....we need to sit and learn u how to tell time......


What did u say Ray......
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I know how to tell the tine, I just don’t know how to do it right like….
I said nothing mom…th..th…that was…….Shannon……
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uhuhhhh...sure......I think Shannon was getting ready for bed??

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MOM! Ray stole my blanky and I'm cold!!!!

Ray ray..... just cause Lizzy isn't here doesnot mean you can pick on me! :-P
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You used bad grammar mom you don’t learn some one you teach some one…..on less your blo…..better not say it…..
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Nuh uh! I'm already in the bed...... well laying on it anyway
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I…..I….I…Did not ste…sob sob….steal…..your …..blankey…….sob…sob…MOM….MOM….Shannon hit me….ooooooch
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Knock it off...Lizzy is nice and quiet, so hush...
Ray, I said it like that to show a point....but it flew over ur head....

Now everyone to bed...I don't want u all getting in trouble when I am sleeping.....now git....

Shannon, I think ur blankey is on the floor.......good night
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I hit you cause you took my fuzzy blanky!!!
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Night mommy!
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Hush....go to sleep....

goodnight
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I think I….I…got a ….sore head ….wh…where….Shannon hit me SOB…SOB…..it hurts Mom….lizzy snuck out the bedroom window…..she has a BF and…and they kissed….I saws them the other night……giggle uncontrollably…..
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Based on the previous postings it sounds as though you have turned in for the night, but I wanted to respond to a comment you made earlier. It really made me think (fog has lifted, however it still remains in the forecast). Your comment was, "with truth comes knowledge." Well, with the experiences I have been having with the NL & my PCP, I think I'm going to turn that phrase around just for them..."with knowledge comes truth!" Maybe once they know more about Chiari they can be truthful w/me & any other Chiarians that follow...then they can honestly & knowingly say, "yes, you should be concerned & this dx is a cause for your symptoms."   - Jean
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Ok girl put them away like the others said.  We can wait for our results together.  We can bet on it like we did on who was getting there MRI first.  I'm betting you get your results first.  I'm calling to lab Monday to get my disk and hope they have the results to put on it as well.  
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good point, jean!  kudos to you for thinking outside the box!

tysgm...bets on!  bet i'll have it monday morning!  loser buys the chocolate and mountain dew!  lol!!!
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your are on.  2 of my favorite things.  
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I wish I knew how to read MRIs too!  Just got a copy of my husbands. :)
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frustrating to have the answers you seek in your hands and not know how to read them, isn't it!  
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It is frustrating and I cant see the logic behind giving a patent a report that is not explained, it just seems pointless, it only adds to the stress in my view because you are going to get it explained to you anyway by your consultant but if you have a report that is not explained you will go to the internet for answers, here yoc may get some answers but they are not unique to you and this can lead to confusion I think.

Ray
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sometimes it can take forever and a day to get the facility to send you a cd of your mri, ct...whatever!  if i ask for it before they even do the test, i have never been denied and i don't have to wait an indefinate period of time~  i have another dr. app this week with the nl and i will need that cd to show him!  i can't rely on the ns office to get the copy of the report to me as quickly as i need it, so as i look at, having the cd is better than having nothing at all!  and when the report does come in, i can fax it over to the nl office!  it's not their fault that i try to play radiologist and read my own xrays!  good thing i'm not a cat or surely i'd be dead by now!!!
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