Chiari Malformation Community
has anyone heard of Zonisamide?
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

has anyone heard of Zonisamide?

has anyone heard of Zonisamide? i will go on this drug once i come off topamax I've been on topamax forever!
molly
5 Comments Post a Comment
Blank
620923_tn?1439824912

  Hi Molly....never heard of this one....from what I read this is a sulfa drug...and helps with seizures and epilepsy as many of the other meds they try with many of us.....

I pray this med helps <3

  ((hugs))
Blank
2063048_tn?1390828211
Had never heard of it until last Thursday! I started on 25mg last week. I will increase by 25mg every week until I'm at 100mg (or I feel great... Whichever comes first!). I'm 2 years post decompression, but I've never had relief. I felt/feel enough better that it was worth it, just tired of being miserable and being a mom. I tried Topamax a year ago and the only thing it did for me was xpcause my hair to fall out. I started with a new NL in April. She was shocked that the Topamax was the only med I had tried, but she said it made her job easier. She started me on 10mg a Elavil, increasing up to 40mg. That helped a little, but not enough. So she just added the Zonisamide. So far, I feel about 50% better most days! which is better than I've felt since before my car accident in June 2011. Of course, if I'm upright too long or do too much, it still gets bad! But for the first time in a while, I'm hopeful.

Let me know how it goes for you!! Other than being super tired, I haven't noticed any other effects.
Best wishes,
Annie
Blank
2063048_tn?1390828211
Oh! she also prescribed Toradol injections for my horrible days. Surprisingly, it helps ratchet the pain down enough to where I can cope!
Blank
979826_tn?1389039958
thanks for your response!! I've been on topamax forever and a day! haha and i saw an article on this and i sent it to my nl and asked him about it and he said we could try so i am coming off the topamax and going to start this I've been on every med know to man with no help and I've had lots of surgeries a few decompressions. your positive reaction gives me hope!!!! i hope you keep getting better!!! <3
Molly
Blank
979826_tn?1389039958
thank you selma!
Blank
Post a Comment
To
Recent Activity
979826_tn?1389039958
Blank
soccero just down :( Comment
4 hrs ago
Avatar_f_tn
Blank
Packersmom87 commented on Attention All Mouth B...
Aug 24
Avatar_f_tn
Blank
punza commented on When Your Cold Is Not...
Aug 16
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
Avatar_f_tn
Blank
Katya4
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
Avatar_f_tn
Blank
Katya4
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI