AS I heard that can happen bc TC pulls down...plus, the PFD opens up the CSF blockage....some drs will cauterize the tonsils to get them to retract...some leave them alone...and some use an very outdated method no longer felt beneficial and that is removal of the tonsils.
Do u know if ur dr just left them where they were?
the only thing i had done was a plain ol mri. my nincompoop dr didn't check for anything else. i'm going to another dr today so i can get a referral to see someone else..hopefully not another idiot dr. he left my tonsils hanging :o)
my first mri was nov 1 09, my surgery was nov 24th, the last mri was jan 2 or 3 2010. god only knows where they are now.
i am STILL having crusty drainage from my incision. ew. it's not as sore or swelled as it was when it was infected last month though. thank god
i have no idea who to see... no idea..i'm gonna see what this dr recommends first..i suppose
i just know it will NOT be Dr William Schwank in Bowling Green, Ky..
unfortunately, i went to him before i knew about this forum...i wish i had known that just because he has done the surgery, does NOT mean he knows what the hell chiari is all about. argh
I am so sorry u had this experience....however, u r right to see what this other dr has to say, and know all they should be doing...checking u for syringomyelia, tethered cord, IIH(intercranial hypertension or old name pusedo tumor cerebri)...Ehlers-Danlos.....DDD....stinosis....for the start.They will also obviously be doing a brain MRI to see what was or wasn't done and see if u have a CSF block with a CINE MRI and look for overcrowding.
Did u look at our list?....u can research them as u wait on ur next dr visit so u have a back up plan....
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