herniation.....?

hey everyone, i dont know, i was just wondering what everyones herniation is...mines 4-5 mm.

[selmaS]

Hi Elle,

Mine was 4 on my right and 6 on my left...right now they r both around a 2 mm herniation...yup I still have a herniation bcuz of TC....until I get that taken care of the herniation can grow again...

Keep in mine it is not the size of the herniation , but the CSF blockage and overcrowding and symptoms that r the top 3 things drs look at  to consider if u will benefit from surgery.

"selma"

[chiarigirl11]

ohh okay, i see....my dr. said i have some CSF blockage and he said that there fluid but very very little.

[lu7997]

Mine is 4-5 but like she said the size doesn't matter.   I hope you feel better.  Small and mightys pack a mean punch.  

[scnhollins]

mine was 8mm and then after i had my decomp it went to 11mm :- /

[selmaS]

Did u get checked for tethered cord?

AS I heard that can happen bc TC pulls down...plus, the PFD  opens up the CSF blockage....some drs will cauterize  the tonsils to get them to retract...some leave them alone...and some use an very outdated method no longer felt beneficial and that is removal of the tonsils.

Do u know if ur dr just left them where they were?

"selma"

[sheila53213]

is cauterize the same thing as shocking them to retract them back to where they should be?

i went from 5mm in Oct '09 to 11mm as of May '10.

Sheila

[scnhollins]

the only thing i had done was a plain ol mri.  my nincompoop dr didn't check for anything else.  i'm going to another dr today so i can get a referral to see someone else..hopefully not another idiot dr.  he left my tonsils hanging :o)  
my first mri was nov 1 09, my surgery was nov 24th, the last mri was jan 2 or 3 2010.  god only knows where they are now.  
i am STILL having crusty drainage from my incision.  ew.  it's not as sore or swelled as it was when it was infected last month though. thank god
cristina

[selmaS]

Oh my goodness....may I ask who u plan on seeing?

Yes, Sheila an electric current is used to shrink them....

Since u still have drainage, do u know if u have Ehlers-Danlos, that can cause u to heal slower than most...I had what I called oozing for months, in fact the last 2 1/2 months it finally stopped!!

I do have EDS, so I kindda knew that was y I was having that issue.

Wow, Cristina, sounds like u need to get some testing done to see just what teh dr sis do and get things straightened out.

Keep us posted on who u go to next

"selma"

[scnhollins]

i have no idea who to see... no idea..i'm gonna see what this dr recommends first..i suppose
*sigh*
i just know it will NOT be Dr William Schwank in Bowling Green, Ky..
unfortunately, i went to him before i knew about this forum...i wish i had known that just because he has done the surgery, does NOT mean he knows what the hell chiari is all about. argh

[selmaS]

I am so sorry u had this experience....however, u r right to see what this other dr has to say, and know all they should be doing...checking u for syringomyelia, tethered cord, IIH(intercranial hypertension or old name pusedo tumor cerebri)...Ehlers-Danlos.....DDD....stinosis....for the start.They will also obviously be doing a brain MRI to see what was or wasn't done and see if u have a CSF block with a CINE MRI and  look for overcrowding.

Did u look at our list?....u can research them as u wait on ur next dr visit so u have a back up  plan....

"selma"