Chiari Malformation Community
hydrocephalus, chiari and a large syrinx - specialist neurosurgeon???
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

hydrocephalus, chiari and a large syrinx - specialist neurosurgeon???

I have hydrocephalus, chiari1 and a syrinx the length of my spinal cord (again! I had meningitis & hydro 1986 and decompression for a syrinx 1987). This time I woke up in Feb 2014 after feeling normal, and since then haven't been able to walk unaided - they gave me a new vp shunt 2 months ago but it hasn't helped the syrinx or symptoms (heavy legs, weakness, numbness, unsteadiness). I have had 1 follow up scan, no advice whatsoever, no follow up discussion at all and am trying to find a specialist neurosurgeon to discuss the next stage with (another decompression).
Any good surgeons who are experts in this, ideally in Scotland? I can't find anyone up here. I could travel down south if necessary.
Post a Comment
To
MedHelp Health Answers
Recent Activity
Avatar_n_tn
Blank
Mizzara commented on When Your Cold Is Not...
Apr 14
620923_tn?1426651955
Blank
bean418, soccero, and selmaS commented on soccero's status
Apr 13
Avatar_f_tn
Blank
maphethi commented on When Your Cold Is Not...
Apr 09
Top Neurology Answerers
620923_tn?1426651955
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
10169340_tn?1415849761
Blank
Nellan12
Berlin, CT
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
Chiari Malformation Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1426651955
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
10169340_tn?1415849761
Blank
Nellan12
Berlin, CT
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI