Aa
A
A
Close
Avatar universal
hydrocephalus, chiari and a large syrinx - specialist neurosurgeon???
I have hydrocephalus, chiari1 and a syrinx the length of my spinal cord (again! I had meningitis & hydro 1986 and decompression for a syrinx 1987). This time I woke up in Feb 2014 after feeling normal, and since then haven't been able to walk unaided - they gave me a new vp shunt 2 months ago but it hasn't helped the syrinx or symptoms (heavy legs, weakness, numbness, unsteadiness). I have had 1 follow up scan, no advice whatsoever, no follow up discussion at all and am trying to find a specialist neurosurgeon to discuss the next stage with (another decompression).
Any good surgeons who are experts in this, ideally in Scotland? I can't find anyone up here. I could travel down south if necessary.
Cancel
0 Answers
Page 1 of 1
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Recent Activity
620923 tn?1452919248
Blank
selmaS commented on skeetelmore65's status
Mar 25
667923 tn?1421466324
Blank
skeetelmore65 is hanging in there and thi... Comment
Mar 25
Avatar universal
Blank
Kay0616 Needs info Comment
Mar 18
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
1306714 tn?1327260680
Blank
muskegon, MI
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
979826 tn?1389039958
Blank
germantown, MD
Avatar universal
Blank
Chiari Malformation Community Resources