well since the last time I was on i went to the doc got new MRIs and now i know that my herniation is of 18mm and there might be some csf blockage and retroflexed ordoint something (lol sorry) my doctor has no idea whats going on i can tell by his confused look as he was looking at my most resent MRIs. I live in El Paso and so far i cannot find a chiari specialist. Can anyone help me PLEASE! i mean not that i want to have surgery or anything i just dont want something bad to be going on in there and i have no idea about it til its too late
Oneof my friends is getting ready to have surgery. She lives in texas and I will ask her who her specialist is... may take me a couple of hours. I'mnot sure she in our forum. YOu are definintely on the right track looking for a specialist...that is so important. YOu will be in my thoughts.
Hi...did u look at the list of Drs in TX we have posted? It is possible that u may have to travel to get to one as they r not as prevalent ans those of us with chiari.
U mentioned u have a CSF obstruction and a retroflexed odontoid...make sure they rule out syringomyelia in all areas of ur spine thoracic and lumbar as well as cervical, and tethered cord, and disk issues, sleep apnea, ICP....ehlers-danlos...as these can affect ur recovery post op.
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