CHIARI MALFORMATION COMMUNITY
if we have too much brain to contain....

if we have too much brain to contain....

then why am i now getting the sensation of what sounds like air between my ears when bending or (it finally caught me) straining?  i'm sure i already know the answer, but couldn't resist giving ray something to jump on!  
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Would you describe it like a "swooshing" sound in your ear??  

This can be a symptom of Chiari, and it is usually caused by elevated intracranial pressure.
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Well….there could be…..loads of reasons…..but one in particular comes to mind…..


I have sinus problems that prevent  the air pressure in my ears from equalising, I get a rushing or gushing noise (not tinnitus) every now an then as well
Glad your up and about again Elizabeth…
Ray
Ps sorry mom lol!!!
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997898_tn?1303738464
not swooshing...more like you outside on a very blustery day and when you turn your ear towards the direction the wind in blowing from....that's the sound.

thanks ray.  me too!  still not 100 percent, but way better than yesterday!  and i can't believe you actually passed up that opportunity!  compassion?  not feeling up to par yourself today?  it's a puzzle...always liked a good puzzle!  : )
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lol...Elizabeth I was waiting for it too...I thought for sure this was a set up for him.....behave...lol.....
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behave?  me?  but don't you know that i'm the GOOD one?  HE'S the one always starting things!  you should fuss with him, mama, not me!    coy little smile, right index fingertip slightly inserted into the corner of mouth and eyes so sincere, you could never doubt me look on my face...
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999891_tn?1330652344
The night is young so watch it tizzy.

For me it is a feeling of fullness in my ear, like when you are on an aeroplane  and your ears go all funny…
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620923_tn?1335125657
Now..Lizzy....

ROD has been good.....and BTW ROD...I had that fullenss where it felt like ur ears had to pop...I even went to the dr thinking I needed my ears cleaned....he said they were fine...go figure.
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what is this?  tizzy, lizzy...what's next?  no. go back. stratch that.  

well if he's so good, than why did he have to say he was sorry to you?  huh? answer me that!  bet cha can't, huh mom?  that's cuz he gearing up to get me!  and he just wants to get you on his side!  watch him mom...he's a sneaky little leprechoaun!
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Is there a medical term for Air head…O ya I forgot DB…
I was saying sorry because you upset mom…you…. You…..ou ou ou make me sooooooo mad....Act your age not your shoe size…lol...lol!!!


I have had the ear thing since I was a child but lately it is much worse…and the tinnitus is bad as well
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620923_tn?1335125657
I also have had an ear issue since childhood.....I had to wear a hat on windy days bcuz I would get instant ear aches....

Now ...Now....be good..u were doing so well too
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999891_tn?1330652344
I used to notice a crackling noise in my ears on occasion for a few weeks before I started having the vertigo, the tinnitus and the fullness feeling is going on for a few years, because I had the noise in my ear and the vertigo, tinnitus and fullness they assumed it was Menears Disease an inner ear illness. I have since learned that Menears is often diagnosed in people who it transpires after further investigation have in fact Chiari, it is a common misdiagnoses.

See mom I’m a good boy…sweet as pie….
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I see...I wonder y we all have this issue...how chiari is affecting the ear, so that it is not detected on exam....and I have not had a good explination....u?


U r being good now bcuz Lizzy is cutting her grass.....
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999891_tn?1330652344
Well I am new to Chiari but have been looking for answers since I was DX with a Syrinx in Feb, I was originally DX with Menears Disease and had been researching that and have vague memories of seeing stuff about Chiari because some of the symptoms are similar, then when I got the DX of a syrinx I had to change the direction of my research and found the links between Chiari and Syringomyelia….I also know that CSF can leak through the ear….Chiari can affects the cranial nerves so it is plausible that ear problems can arise in people with Chiari, either way it seems to be a problem for people with the illness

Ooo yaaaa ye girls stick together…hmm…
What do you call a blond farmer ….an expert in her field lol!!

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620923_tn?1335125657
...U can also have a CSF leak thru the nose as well......


only calling them as I sees them....
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lol...put on your glasses so moooom….lol!!!

I guess it stands to reason, could it be PND issue as well?
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I have my glasses on....but it doesn't help my cognitive issues...lol....

PND....I do have PND....but that goes down ur throat....most of the time.....
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i'm so sorry i missed all the fun!!!  but i told you he was the instigator!! lol!
the only problems i had as a kid, was everytime i tried to learn how to swim, i would end up with an ear infection.  after 5 or 6 summers of this, my mother gave up and didn't enroll me again. there was an incident about 6 or 7 yrs back where i woke up in the morning and my ears felt funny.  i kind rubbed them (from the outside) and i heard this crunching noise and could feel something inside.  i gently stuck a qtip just barely inside the opening of my ear and when i took it out, it was covered in dried blood!  it was more on one side than the other, but don't remember which one it was. i went straight to my pa who confirmed what i had seen as blood and then she sent me directly to the ent.  he looked in my ears, said he saw nothing and sent me packing.  i went straight back to my pa, she took a qtip and swabed my ear and it came out with dried blood on it.  she pronounced the ent "nuts" and gave me ear drops because she didn't know what else to do.  it cleared up within 7-10 days.  about 2 weeks after that all started, i had my first, and worse to date, bout of vertigo!  so, maybe there is a connection?
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kooky stuff this chiari.....I never had the dried blood....but times when my ears hurt..from wind or times when it felt like someone jabbed an ice pick into my ear
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wonder if there really is a connection or if it is just a coincidence...
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too many chiarians have th eproblem for it to be coincidence
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I have noticed the more severe the pain the more "stopped up" my ears feel.......I don;t know either. Thats what;s hard is trying to figure out whar is a symptom of the chiari or if it is another problem altogether
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unfortunately, this is a question we may never know the answer to.  so, we suffer and wonder.....
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Chalk up another chiarian with ear pressure & ear aches (like all day Saturday & most of today). When I was 'in the tube' during my MRI the pain & pressure in my ears and the back of my head was so intense I thought my ears were bleeding. Didn't understand it then (that MRI showed the Chiari), so I thought that maybe the noise was just getting to me & it was all in my head (sorry, no pun intended). I have read some case histories where others have experienced the same ear issues.

I had my PCP check my ears this morning because I wanted to make sure I didn't have a legit ear infection thingy going on...and I don't.  When I hurt enough for my husband to notice, he'll tease me about my brains leaking out of my ears...lol.  We actually use it as code in public when he wants to know if I need/want to go home & rest (or cry).
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