is this diagnosis possiblly a mistake or that a child can outgrow chiari?
Ok, so we just came back from the NS and basically he said she doesnt need sx and he said he doesnt think she will have problems from this. he said based on looking at her mri he might even think that its the position that might cause her to look like she has a 4-5mm herniation and that it might not even be a true herniation. he explained that where the "herniation" is there is a lot of space and thats not typical for chiari and thats why he think this might be the way she was positioned in the mri. he also said based on her symptoms he doesnt think its from this. he said he has seen even cases where the kids had it then a couple years later didnt have it. I asked him how many kids hes seen and he said 100s and i asked how many sx he said prob 10 a year. he said hes going to report that to the neurologist and even suggest that he doesnt believe this is true case. oh an no restrictions... Im clueless.... both the neurologist and NS doesnt think she has this or is symptomatic.
my daughter has migraine like headaches from time to time, every once in a while. I dont have any specific times that she has it. she does NOT get headaches when she sneezes, coughs, bends her head, jumps, or any activities so far. she says she feels like gagging sometimes but its very selective. example, she gets it every Mon-Fri before school but on weekends she doesnt. the dr said this can be anxiety related and told me not to tie everything to chiari... well im gonna get a second opinion anyways.
any weigh ins here? has anyone ever heard of someone outgrowing chiari? or a misdx based on positioning in the mri?
After reading your post I'm so happy to hear your getting a 2nd opp. I had hernination of 5 to 7 and yes it was Chairi, and my NS stated that it doesn't go away it would only get worse with age. So your on the Chriain run around right now, but you will find the right NS that will help and guide you. I know how flustrating this can be and so discouraging. Thinking of you on your journey, but please keep pushing and keep being persistant and you will find the answers.Some Dr go by he size. Well mine was shaped as a cone so I wasn't getting any fluid to the brain,,so the lenght doesn't matter as much as the width. Wishing you a better appt, and better answers.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.