miss diagnosis

[cazzawazza]

over 2 years ago i was givin an mri scan for back pain when it come back i was sent to see a specialist at the hospital that told me i had chairi and it was 7mm but they had to send results to another hospital to see what tge next step to take woukd be, so when it come back i went back to see the same dr he said it wasn chairi so i just took his word for it left the hospital thinking what the hell did he see that messured 7mm. i got nearly every symtom on her and getting worse i noticed within tge last month my hair has got so thin can this be another syptm. i get headeach neckache muscle pain sholder pain get like a numbness felling over the top of my head lightheaded pims n needles under my toes and at the sides of my hands and when i sit down with my leg bent or something it tends to feel dead really quick, trouble word finding like everyday words and bad memorey and concentration. sonetimes when i go to look for something i can forget what in looking for over 5 times.... what do uses think i shoukd do about hhis please ? longest think ive tyoed in a while hot a sore head doing it

[selmaS]

  So you are in the UK...getting MRI's and reports may be more difficult then it is here in the States.....but still try.

The Ann Conroy Trust has a list of Drs for you to research.

http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS-UK/show/1503569

Keep in mind the list is not a referral nor an endorsement for those listed on it....it is only meant to be used as a starting place to research Drs.

[cazzawazza]

forgot to say I'm live in Greenwich london

[cazzawazza]

I will do that asap thank you

[selmaS]

  The Dr would charge but the hospital or facility should not....never know, it really depends where you are.

Going forward request copies of ALL testing and reports even blood labs.

[cazzawazza]

That's really helpful thank you, I should have kept all the letters, I will contact the hospital and see how I get copies do they normally charge for this ? thank u

[selmaS]

  Hi and welcome to the Chiari forum.

First, do you have a copy of the MRI and the report? If not, contact the facility that did the studies and request a copy on disk as well as a written report.

There are far too many Drs that are not aware just how Chiari can and does affect those that have it.

Your symptoms can indicate Chiari, but you really need to rule out ALL related and non related conditions as there are a few that have the same if  not similar symptoms.

Having the right Dr is KEY ! Let us know what area you live in as we may have a few names of Drs for you to research. Keep in mind you may have to travel to get to a true Chiari specialist.

Know you are not alone.