I am 10 mo post off decompression and my mood has been great but since my last surgery wow I am so cranky and what makes me sad is my ha and pain are better but I am so worn down I know I just had surgery but I don't know if I will ever have energy again. My husband is so great and takes over but I hate feeling incompetent I have always been very independent.....think I may be depressed never saw that one coming either I was always the picture of optimism. I am afraid to have hope sorry am having a pity party today thank you all for being there.
Oh i really understand u.i have the same here...i think they do not understand what we have and they cant see it.actually yesterday i went out to eat with friends and everybody said...u look great,u r much better arent u...mmmmhhh no i am not at all.my relationship is suffering a lot and i dont know if i can stay like this much longer.i am tired of explaining all the time that i feel bad....i cant join to dance...etc...And in my case i can tell u,he does not get used to it
I'm sorry Dana:( it is exhausting trying to pretend you are ok Shen you are not. I understand how you feel ... I know that doesn't help
I wish there was an easy answer for how to handle all those around us, but we can't...just trying to get my family to understand that even tho there was a few weeks till Christmas, did not mean we have all the time in the world to get to something, I have to work on things slowly over that time frame in order to be able to feel half way decent for the actual holiday!!
I have to admit tho, my DH makes most all meals...it started with just the big holiday dinners bcuz of how I worked and I was always tired, we had no idea my dx back then....but it is a huge help now...except that many times he is making a meal at 8pm...too late when u have reflux....
So we can have some good aspects, and some not so good aspects...they get it , but not all the way...and I guess them getting just some of it is better then not at all...u know?
How far post op are u now?....moods changing is very typical as u heal...so just say it is part of the healing process...lol...and it can take up to 2 yrs to heal....that way he may learn to ignore some of it...and mayb begin to help u a little more,
"selma"