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2054597 tn?1344044650

numbness?

I just wanted to know has anyone else ever experienced numbness in there face n head due to chiari?? My chiari got a little bigger as it went from 7mm to 9mm in a few months and the CSF flow MRI showed in February the fluid in the back off the brain was slowing down I have a app with the chiari inst. In new York on April 25th with dr. Rekean? Has anyone has any experience in seeing this doctor? Either everyday I struggle with just out of it feeling not feeling right at all numbness,seeing black floaters in my eyes,dizzyness heart palpitations and aoooooo much more! Just scared because no w I just found about almost 2 weeks ago I am now 7 weeks pregnant! Which is very exciting but very nerve racking my obgyn says the baby will be fine I have to have a c- Section and so fourth so many mixed emotions going on well if anyone has any advice they can give me onto my symptoms or the 7mm chiari or if like I said ever seen dr.reaken out of new York I would love to hear it thanks so much....
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1925822 tn?1333705617
Congrats from my side to and yes i did experience a lot of numbness.my whole left side plus the teeth flesh!
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1827123 tn?1383865276
CoNgRaTuLaTiOnS !!!  so glad the Dr. is already discussing the c-section with you. I had an emergency c-section with my first, but then was told I could deliver the next 3 normally. I had such a hard time with the natural births, now knowing it was chiari complications. And knowing much more about births now I realize all of mine should have been c-sections. Read the book and do your homework so you'll be prepared.
Enjoy this little blessing!
Jiggle
Helpful - 0
1968463 tn?1374757813
If you goto my page and look in my posts, I believe that I posted a question called head numb a while back. THere were plenty of responses. I also have the visual disturbances you mention as well.
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620923 tn?1452915648
COMMUNITY LEADER

  Hi...as I mentioned b4 I went to TCI as well, but the NS u r going to see came just as I was having surgery and was settling in, I got a letter from him, but that was the extent of it.

  Also, just so u can see just how many have dealt with numbness, use the search this community feature with the word numbness...u will see just how many have asked this question.
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1903798 tn?1333905288
http://www.asap.org/index.php/medical-articles/pregnancy-and-chiari-malformation-with-or-with-out-syringomyelia/
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1903798 tn?1333905288
We all have different symptoms (and share some) a lot of us post in our profile and journal what is going on:) feel free to snoop
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1903798 tn?1333905288
Congratulations on the baby and I am glad to hear they are advising you to have a c secion.  There is a book on chiari and pregnancy written by Diane Mueller.  She works with my neurosurgeon Dr Oro.   Facial numbness on 1 side absolutely can be from chiari.  Every time I see Dr Oro he actually brushes both sides of my face with his fingers and asks if it feels the same so it is actually something they look for.  Welcome to our group...sorry ou had to find us.
Helpful - 0
1968463 tn?1374757813
I as well experience numbness in the back of my head andup toward the top and ears. It is the weirdest feeling if you ask me. I also from time to time experience numness or a pullingin my face around my mouth and cheeks. Sorry to hear that you are having a rough time.

On another note:  CONGRATULATIONS !!!!!!
Babies are so exciting. I can only imagine how it frightens you though. I didn't find out about my Chiari until after my daughter was born. She was my third and final child, and doctors tend to think that my three natural births sort of triggered my symptoms.

I do not know anything about the doctor that you are seeing except that the institute is highly reccomened and they are the best.

BEst of luck to you honey !!! Feel free to add me as a friend ....I as well have a 7 year old son :)
Helpful - 0
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