Chiari Malformation Community
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numbness

Does anyone else have numbness on the back of your head,?  Is this normal with chiari ?
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1925822_tn?1333709217
hi yes its normal to have numbness with chiari...pretty much everywhere as for nerve and brainstem compression.my half face went numb...so did my mouth...my arm...my leg etc...i know its pretty scarry
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620923_tn?1405964489

  Ditto to what Iris said,,...I had a lot of numbness ...in my hands, feet, and my face....it is a very odd sensation, and with the facial numbness came some sagging of my face as well....

We have to remember with Chiari it is affecting our brain stem which is the control center for all we feel physically and emotionally.....so do not be surprised to have these odd sensations, all nerves can be compromised with this,....so depending on which nerve it is will depend on what and how u feel or do not feel....
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Avatar_m_tn
Thank you for responding
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Avatar_m_tn
I had my emg yesterday and the Dr said my weakness in my left side was probably connected to me having chiari. it ways nice to hear someone understand. Hopefully my NS will feel the same way.The NS I saw Monday said he wanted me to wear wrist and elbow splints for 22hrs a day but I am waiting to see what the other NS says before I spend $100 on splints.
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620923_tn?1405964489

  This is all a part of the process...I think the majority of us go thru these tests...and  the Diff dx's  and items like the  splints....I agree wait and see what the other Dr says...and do make sure they check u for  EDS too.....
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1546631_tn?1321646804
Lol my fiance just told me the other night that I was talking in my sleep, frantic that a garden gnome took the back of my head, because I swore I couldn't feel it there. I get numb tons, too, and also have left sided weakness. Good luck with your NS appt, I hope you get some answers :-)
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Avatar_m_tn
Have you ever been prescribed gabapentin ? What is it for my NS really didn't explain to me what it was for. I read up on it  and said it was anti seizure medicine. I don't have seizures does it work for other symptoms of chiari ? I am afraid to take it.
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620923_tn?1405964489

  Hi...yes, many seizure meds and other meds are used for pain control or to help reduce inflammation.....

I was on gabapentin which is the generic form of Neurontin....this is not an uncommon drug for us chiarians....

DO not be afraid to try it, as it may work for u....unfortunately it  did affect an IBS issue I already had so I was not on long enuff to see if it would  be of ne help to me....

Let me know how it works : )
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Avatar_m_tn
I had my spine MRI today but could nor do the brain MRI because I hate tight spaces and that helmut thing they put on you made it worse so they scheduled me for a different machine on the 20 th but I see my NS on the 19 th.
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620923_tn?1405964489

  Call ur NS and let him know u did not have it all done yet and reschedule....u can  get this all taken care of so u do not have to go back to him as well....

  Call him and let me know : )
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