Chiari Malformation Community
nystagmus
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

nystagmus

Does anyone have a nystagmus caused by chiari? I had mine before surgery and now 1 year and 4 months after my surgery I still have it.  It causes extreme dizziness, nausea and vision problems.  How do others deal with this condition?
Tags: nystagmus
Related Discussions
3 Comments Post a Comment
Blank
620923_tn?1439824912

  Hi and welcome to the Chiari forum.

  Many with chiari do indeed have this and I know a few members do have it....

If u had surgery and still have this symptom, what did ur Dr say is the reason?....did they rule out syringomyelia? in the cervical , thoracic and lumbar spine?...how about tethered cord, or a disk issue?

   DO u have ne other symptoms?Did u have ne symptoms that went away post op?

     "selma"
Blank
Avatar_f_tn
i have it with certain movements. some mornings getting out of bed or just rolling over will cause me to have nystagmus for a few minutes. you should probably see an eye doctor and explain your situation. i went to the eye doctor today and talked about it and he was very interested and is helping me as best he can.
Blank
Avatar_f_tn
I had a nystagmus for a long time.  I couldn't read because moving my eyes back and forth caused strain, headache, dizziness, and nausea.  I went to occupational therapy for a few months and they had me doing vision exercises to strengthen the muscles.  It made a HUGE difference.  I still have to do the exercises every now and then when I start feeling eye strain, but otherwise I'm almost normal vision-wise.
Blank
Post a Comment
To
Recent Activity
620923_tn?1439824912
Blank
selmaS commented on soccero's status
1 min ago
979826_tn?1389039958
Blank
soccero just down :( Comment
7 hrs ago
Avatar_f_tn
Blank
Packersmom87 commented on Attention All Mouth B...
Aug 24
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
Avatar_f_tn
Blank
Katya4
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
Avatar_f_tn
Blank
Katya4
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI