Chiari Malformation Community
nystagmus
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

nystagmus

Does anyone have a nystagmus caused by chiari? I had mine before surgery and now 1 year and 4 months after my surgery I still have it.  It causes extreme dizziness, nausea and vision problems.  How do others deal with this condition?
Tags: nystagmus
Related Discussions
3 Comments Post a Comment
Blank
620923 tn?1452919248

  Hi and welcome to the Chiari forum.

  Many with chiari do indeed have this and I know a few members do have it....

If u had surgery and still have this symptom, what did ur Dr say is the reason?....did they rule out syringomyelia? in the cervical , thoracic and lumbar spine?...how about tethered cord, or a disk issue?

   DO u have ne other symptoms?Did u have ne symptoms that went away post op?

     "selma"
Blank
Avatar f tn
i have it with certain movements. some mornings getting out of bed or just rolling over will cause me to have nystagmus for a few minutes. you should probably see an eye doctor and explain your situation. i went to the eye doctor today and talked about it and he was very interested and is helping me as best he can.
Blank
Avatar f tn
I had a nystagmus for a long time.  I couldn't read because moving my eyes back and forth caused strain, headache, dizziness, and nausea.  I went to occupational therapy for a few months and they had me doing vision exercises to strengthen the muscles.  It made a HUGE difference.  I still have to do the exercises every now and then when I start feeling eye strain, but otherwise I'm almost normal vision-wise.
Blank
Post a Comment
To
Recent Activity
Avatar universal
Blank
Nacht246 commented on When Your Cold Is Not...
Aug 22
19045496 tn?1471569354
Blank
Rosemary2848 joined this community
Welcome them!
Aug 18
Avatar universal
Blank
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
979826 tn?1389039958
Blank
soccero
germantown, MD
Avatar f tn
Blank
lasel22
Chiari Malformation Community Resources
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
979826 tn?1389039958
Blank
soccero
germantown, MD
Avatar f tn
Blank
lasel22