opinions needed about Dr. Michael J Rosner

[10Ebtrfly]

I'm a patient who's been on a 6 yr journey of trying to find out what's wrong with me.  So many drs have given their meds, and their opinion ( some of which have laughed at me when tests have come back "normal" even though I'm sitting there clearly in pain).  
The dr I see the most & knows me best suggested I see Dr. Rosner bc he thought I could have Chiari 1 based on so VERY many symptoms he helps me manage.  I have a pacemaker, and this has greatly hindered the ability to look at things more clearly.  Dr. Rosner ordered a CT Myelogram (along with other tests), and they all showed a very clear picture of what is wrong.  The ONLY thing is that I have a 1mm herniation, BUT my symptoms have diabilitated me in such a way that I am practically home bound bc it's so hard and hurts so much to leave.

MY QUESTION/NEED:  I've researched SO much about Dr. Rosner, as well as so many other chiari drs that have had medical board/license problems, but I would be MORE than grateful if anyone out there would be willing to share any experience they might have had or had direct contact with concerning Dr. Rosner.  I feel comfortable with him.  My "gut" feels comfortable with him, but there are still others that ask me if I know what he's done & why I feel comfortable with him.  

Any insight would be MORE than appreciated!  Thank you - Eyrin

[Missys1974]

Can I please have his email? My email is ***@****. I am so tired of suffering with this pain and being shuffled around and given the wrong diagnosis. From MS to lupus or migraine.

[selmaS]

  Hi and welcome to the Chiari forum.

Thanks for adding ur experience with this Dr....I know he has been put to the test to show what he is trying to achieve and it is sad that he has to.

It is great to hear positives about true Chiari Drs that dedicate their lives and career to help those with Chiari and related conditions.

[lisactal]

At the risk of sounding like a "crazy cultist" Dr Michael J Rosner saved my life. He is my hero. He did my surgery in 2002 and I would not be here if it were not for his pioneering selfless work.

[Viva001]

Hi, I just scrolled to the bottom to see why this bumped up.  I am a patient of Dr. Rosner's, Dxd with Chiari 0.  What do you mean by "updated"?  (have you called or visited the office?).
How old is your daughter?

[Jellieb]

Please update this if you can. My daughter is chiari zero but incapacitated. We are in Hendersonville.

[10Ebtrfly]

Youngwife - Thank you for your help with the haircut issue! Allan and I were looking online last night at some hair styles that are short and kind of short to see what we both liked and thought we'd prefer.  I just don't want to mess with washing so much hair with all those stiches back there!  Or was it harder to do so bc of it being short and were the stitches able to get wet?  My hair is just so thick and heavy that I want this silly matter to be one that I don't have to think about down the road! Silly uhg!

fibrotj - Have you decided to call Dr. Rosner's office to see him?  I think you'd be very happy if you did!  My symtoms have made things so hard that my husband puts me in one place for the day when he leaves for school, and then either he or my parents -whoever gets home first! :) - comes to help me move.  I can move to the bathroom, that sort of thing, but I never thought I'd get to this point!  This time last year I was able to walk freely at home, and go out some (even went with Al when he played golf!).  But whwen we flew to his parents this past Christmas...well, I was in our bedroom more than not!  FRUSTRATING!!!  

But for a kid,,,I can only imagine how her frustrations must be multiplied!  I've thought about her, and talked with Allan about her since we've met.  She's in our morning prayer, and our prayer seems to be growing by the day! :)  Fibrotj I do pray that you find your help so that you can enjoy life more!  I don't know how much all of this has changed everything, but the littlest things, like still needing a ride to my dr appt tomorrow & can't find one, seem to get in the way which makes a difference.
I am...I would really appreciate a prayer or two. My faith has surely taken a hit through all of this!  6 years of being home, not teaching or coaching, and being on the opposite side of town from all of my friends has led to days that have been pretty dark.  But I've really tried to pick myself up, and just do..just "do".  Anyway...I need to start finishing some work.  We go get our taxes done tonight.  And on top of that we're being auditted for the '08 year!  We spent the month of Dec. at the Cleveland Clinic in'07, and our medical bills we're HIGH in '08 which seems to have flagged something!  Just what the dr ordered before surgery! Another prayer request!
Thanks and love - eyrin