pain after surgery

[tandmstephens]

Hi! I had surgery for chiari in april of this year, but the pain that I had in my neck and shoulder has not gone away. My neurosuregon refered me to a neurologist who has put me on an antidepressant that did not help and now I am on neurotin that is not helping either. a month ago at work i got hit in the back of the head with two big plastic boxes with items in them. Now my pain is worse and the pain travels down my back. The neurologist does not like giving pain meds and it is getting unbearable. does anyone have any suggestion? I've had an mri but have not gotten the results back. I've been told to double my doseage of neurotin from 1800mg to 2400mg . This is very frustrating. has anyone continued to have pain even after their surgery?

[beentheredonethat2x]

My daughter also has a great deal of neck, back, and even hip and knee pain. She had extensive bloodwork done that an infections disease specialist looked at and he found nothing abnormal. They finally did a spinal tap (lumbar puncture) and found her spinal fluid a mess (aeseptic meningitis) and her spinal pressure way too high. They said either one alone could cause all her pain, but both together are even worse. It was nice to find out why they believe she is in pain, but they sent her home after 4 days in the hospital with no prescription, no referral, nothing! I sincerely hope you find out the cause of your pain.

[selmaS]

Yeah tethered cord is usually attached in the lumbar spine and could be the reason for lower back pains, leg issues and even bowel and bladder issues.

U r welcome....as soon as u get to a true chiari specialist they will look for these related conditions.
U r never alone here : )

"selma"

[tandmstephens]

thanks! I will look for specialist. No I was not check to see if I had syrinx or tethered cord. I it possible that it is down lower in my back and that is why I,m having pain? they have only done mri of the cervical and thoratic areas. Thanks again this forum has given me alot of info and makes me fell better to read what others have gone through i don't fell so alone.

[selmaS]

Hi, it is possible that u have a chiari related issue going on.

Were u checked for a syrinx, or tethered cord?

Many can have perm nerve damage...the surgery is not a cure, but a way to slow the progression of the condition.This can all depend on how bad ur symptoms were prior to surgery.And many continue to have the same pains as b4 surgery and others have some they never had. And yet even more have relief from many of their previous symptoms.

Try and get a second opinion from a true chiari specialist and go from there.

See our Chiari specialist thread for drs names to research.
"selma"

[tandmstephens]

I am at my wits end!!! my mri came back normal which is good, but why am i in so much pain!!! this is very frustrating.