Aa
Aa
A
A
A
Close
Avatar universal

pediatric nuerosurgery

my son of age three was recently diagnosed with arnold chiari type 1 in august this past year , we were also told that he would need to have surgery with in three to 6 months or he could become paralysed from the nerve damage it is already causing . We are lost and do not know where to go to wanting the best for our child it is hard to find ... we are asking for recommendations for pediatric nuerosurgeons we live in louisiana but will travel where ever is necessary .... please help thank you
2 Responses
Sort by: Helpful Oldest Newest
3224597 tn?1347318788
Dr. El Nihum in Temple, TX does the Chiari Surgeries at the pediatric hospital where I work as a nurse. He does 2-4 per month. He is affiliates with Scott and White Healthcare & McLane's Children's hospital.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

I am so sorry that u and ur child r going thru this, it can be quite a frustrating and scary journey...but know u r not alone.

We do have a list of Drs, but it does not indicate which ones will treat children...I know Dr Oro does not....but the Drs at TCI, and Dr Henderson in MD do....there is also a Dr Frim in Chicago.......outside that u will have to research them, plus the rest on the list, u should be able to see the list on this page.

May I ask what symptoms lead to the testing, and which tests were done to date ?
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease