my son of age three was recently diagnosed with arnold chiari type 1 in august this past year , we were also told that he would need to have surgery with in three to 6 months or he could become paralysed from the nerve damage it is already causing . We are lost and do not know where to go to wanting the best for our child it is hard to find ... we are asking for recommendations for pediatric nuerosurgeons we live in louisiana but will travel where ever is necessary .... please help thank you
I am so sorry that u and ur child r going thru this, it can be quite a frustrating and scary journey...but know u r not alone.
We do have a list of Drs, but it does not indicate which ones will treat children...I know Dr Oro does not....but the Drs at TCI, and Dr Henderson in MD do....there is also a Dr Frim in Chicago.......outside that u will have to research them, plus the rest on the list, u should be able to see the list on this page.
May I ask what symptoms lead to the testing, and which tests were done to date ?
Dr. El Nihum in Temple, TX does the Chiari Surgeries at the pediatric hospital where I work as a nurse. He does 2-4 per month. He is affiliates with Scott and White Healthcare & McLane's Children's hospital.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.