Aa
A
A
Close
Avatar_universal
pediatric nuerosurgery
my son of age three was recently diagnosed with arnold chiari type 1 in august this past year , we were also told that he would need to have surgery with in three to 6 months or he could become paralysed from the nerve damage it is already causing . We are lost and do not know where to go to wanting the best for our child it is hard to find ... we are asking for recommendations for pediatric nuerosurgeons we live in louisiana but will travel where ever is necessary .... please help thank you
Cancel
2 Answers
Page 1 of 1
620923_tn?1452919248

  Hi and welcome to the Chiari forum.

I am so sorry that u and ur child r going thru this, it can be quite a frustrating and scary journey...but know u r not alone.

We do have a list of Drs, but it does not indicate which ones will treat children...I know Dr Oro does not....but the Drs at TCI, and Dr Henderson in MD do....there is also a Dr Frim in Chicago.......outside that u will have to research them, plus the rest on the list, u should be able to see the list on this page.

May I ask what symptoms lead to the testing, and which tests were done to date ?
Comment
Cancel
620923_tn?1452919248
Comment
Comment
Submit Comment
3224597_tn?1347322388
Dr. El Nihum in Temple, TX does the Chiari Surgeries at the pediatric hospital where I work as a nurse. He does 2-4 per month. He is affiliates with Scott and White Healthcare & McLane's Children's hospital.
Comment
Cancel
3224597_tn?1347322388
Comment
Comment
Submit Comment
Your Answer
Avatar_universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
pediatric nuerosurgery
Submit Answer
A
A
Recent Activity
620923_tn?1452919248
Blank
selmaS <3 <3 Happy Valentines Day ... Comment
13 hrs ago
4760166_tn?1398360913
Blank
gjjl, and The_beat_goes_on commented on gjjl's status
Feb 10
16744917_tn?1451270439
Blank
gjjl I have a leak and now am ha... Comment
Feb 10
Top Neurology Answerers
620923_tn?1452919248
Blank
Allentown, PA
562511_tn?1285907760
Blank
CA
1306714_tn?1327260680
Blank
muskegon, MI
Avatar_universal
Blank
7530528_tn?1428275172
Blank
TX
Avatar_universal
Blank
Chiari Malformation Community Resources