plz help me

[ateeq4b9]

hi my name is ateeq and iam frm india.iam 20yrs old.i was suffering with headaces when i gone for mri scan i found descent of tonsills below foramen magnum-chiari type1.there are no chiari specialists in india.our neurosurgeons say i need surgery.what should i do now?do i really need surgery?whom shd i consult?if i  dont go for surgery will it effect my life?plzzz some help me

[ateeq4b9]

ok thank u so much

[selmaS]

Hi....I am not sure, but it could be we r not as active with the fact it  hurts to be active.

One reason I asked if u had a weight change, is bcuz ne change in weight can affect GERD and it can also cause a change to ur CSF and  the  amount that is produced.

So u could be dealing with a condition referred to IIH...or intercranial hypertension....also known as pusedotumor cerebri.

"selma"

[ateeq4b9]

thanku selma for your advice my weight been increased 10 kgs why does it happen

[selmaS]

water on the brain is hydrocephalus...syringomyelia is a cyst that fills with CSF

Hydrocephalus can cause a syrinx to form (syringomyelia) and can force the tonsils into a herniated state.

A shunt is sometimes used to help divert the excess fluid....this helps with the pressure and sometimes allows the tonsils to retract.

Ur symptoms will determine if ur drs need to address this as is the possibility of the syrinx putting pressure on ur nerves.

Survival with a syrinx has not been an issue.....sometimes it is the outcome of surgery that is the issue...but as with ne health issue there r no guarantees as to how u will feel.

Were u told this is a congential issue?....do u have a weight issue? or a recent change in ur weight?

"selma"

[ateeq4b9]

hai salema thanks a lot for your suggestion.iam suffering with chiari type1 when i met doctor he told iam also having water in brain that is syringomyelia.he said doctors can do nothing for tht.is it true?cant i survive?my doctor said there is no guarantee water level may increase with in 2mnths 2 yrs or 20 yrs or not anytime.so can i survive is there any guarantee plz tell me

[selmaS]

Hi...I am  not sure if u an go somewhere else to consult with a chiari specialist.....if u can not, how much experience do ur drs have with chiari.

What r ur symptoms besides headaches?

Did they check to see if u have a CSF blockage and /or overcrowding?

Chiari can progress...it can stay the same...u must look at how the condition is affecting u and ur quality of life.

Once u have a dr u feel knows chiari and u r comfortable with...he/she should be able to tell u what benefits surgery can give u.

Most chiari drs will not operate unless the benefits out weight the risks.
I hope this helps : )

"selma"