posterior fossa box surgery

[bpendleton]

Has anyone seen a surgeon who will do the posterior fossa box surgery for cerebellar slump?  On the Conquer Chiari site, I read a summary of a study done at UCLA but cannot find the surgeon, J.B. Heller, who coauthored the article and did the surgeries.  Anybody know anything?  My son (19 years old) is 3 years post chiari surgery (three surgeries with lots of complications) and continues to have severe headaches and related symptoms that are debilitating.  I'm looking for someone who could help improve his quality of life.  

[selmaS]

Hi and welcome to the Chiari forum.

From what I am to understand ALL TRUE CHIARI NS will do this surgery....so that would be Dr Oro, Dr Hefez, Dr Bolognese, Dr Di, Dr Hamfp, Dr Green,.....these r just a few names of chiari drs that u can check into....except Dr Di...that may take some time until he is settled into a new location.

We do have a list of drs....all u can do is research.....have u contacted a few drs already that u r having an issue finding one?
http://www.medhelp.org/health_pages/Neurological-Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

Glad to have u join us, but so sorry for the reason u had to seek us out.

"selma"

[xmelax35]

I have the same thing, but unfortunately the doctor I am seeing is leaving the place I see him at. So I am on to the next one he sends me too unless he lets us follow him to his new practice. If I hear anything I will let you know if anyone I talk to has had it. Sorry to hear this is happening to him. I know what he is going through.