salma

[Joy35]

Why does some surgeons deny surgery for patients with cm? My MRI shows that I have a 12mm decent and mild CFS fluid restriction. I have a lot of symptoms and day to day work is getting very difficult. I live in KY and don't know what to do next. Please help!!!!

[sharifulislam]

Love to life ok

[selmaS]

  Hi and welcome to the Chiari forum.

Many times the NS we may see does not have enuff knowledge on chiari to know if and when chiari surgery should be offered.Some r under the impression that a finding of chiari is incidential...and that it means nothing.

Where u checked for a syrinx?....Since u have some CSF flow restriction, it is possible that u may have one and u should have a MRI of ur cervical spine, thoracic and lumbar spine.

U also want to rule out tethered cord with the lumbar MRI.

The size of ur herniation is not the main concern, the width of it is...and we already know u have an obstruction....u also need to know if u have overcrowding too.

Next is how is this impacting ur overall health.....what symptoms r u experiencing?

U deff need to find a true chiari specialist...we do have a list of drs, it is not meant as a referral, but a means to help u start ur research for a dr that is right for u.-http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1293483

Surgery is not a cure.....and it is possible to feel worse after surgery....so if u have a good dr, u should be asking him/her y they feel u would not benefit from surgery....not all chiarians r surgical candidates.

Please list ur most prevalent symptoms.

"selma"