Chiari Malformation Community
saw ns today, more frustrated than ever
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

saw ns today, more frustrated than ever

Okay, I saw a dr today..very disappointed. He looked at my films and said I had a 1.5mm herniation, when my report cleary states 5 mm (to be fair it is listed like this :
Findings:
1. 5mm cerebellular.....
2. no other remarkable.....
The 1. was numbering the results.
Anyway;, he said this was not causing my symptoms and  there is nothing wrong with my head.  Never looked at my spine (obvious scoliosis). He wasn't rude, but since my herniation didn't reach the C-1 level he said it couldn't be causing my problems. I know I'm positive the the hypermobility EDS..still have pronounced dizziness, head/neck pain/tinnitus/balance problems..he said i should see and ENT and another NL.  
I cried most of the way home (3 hrs..alone).
I expected him to at least look at my spine and test for a syrinx. I started to argue..but why bother?
Am I the crazy one?
620923_tn?1405964489

No indeed u r not the Crazy one there r far too many Drs NS's that have no idea how to review MRI's and interview patients with this condition.

We have dubbed this the Royal Chiari runaround bcuz they brush us off to diff drs......

I had this happen several times until I found my NS that did my surgery,....y bother, bcuz u know something is wrong and one of them was that Dr.
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
2 hrs ago
620923_tn?1405964489
Blank
selmaS commented on TAKE ME AWAY...
4 hrs ago
10588019_tn?1411320063
Blank
kkluv commented on TAKE ME AWAY...
5 hrs ago
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_n_tn
Blank
wonderchiari
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
Avatar_m_tn
Blank
Ball123
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_n_tn
Blank
wonderchiari
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
Avatar_m_tn
Blank
Ball123
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany