Chiari Malformation Community
saw ns today, more frustrated than ever
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

saw ns today, more frustrated than ever

Okay, I saw a dr today..very disappointed. He looked at my films and said I had a 1.5mm herniation, when my report cleary states 5 mm (to be fair it is listed like this :
Findings:
1. 5mm cerebellular.....
2. no other remarkable.....
The 1. was numbering the results.
Anyway;, he said this was not causing my symptoms and  there is nothing wrong with my head.  Never looked at my spine (obvious scoliosis). He wasn't rude, but since my herniation didn't reach the C-1 level he said it couldn't be causing my problems. I know I'm positive the the hypermobility EDS..still have pronounced dizziness, head/neck pain/tinnitus/balance problems..he said i should see and ENT and another NL.  
I cried most of the way home (3 hrs..alone).
I expected him to at least look at my spine and test for a syrinx. I started to argue..but why bother?
Am I the crazy one?
620923_tn?1436154699

No indeed u r not the Crazy one there r far too many Drs NS's that have no idea how to review MRI's and interview patients with this condition.

We have dubbed this the Royal Chiari runaround bcuz they brush us off to diff drs......

I had this happen several times until I found my NS that did my surgery,....y bother, bcuz u know something is wrong and one of them was that Dr.
Blank
Post a Comment
To
Recent Activity
979826_tn?1389039958
Blank
soccero surgery #25 aug 18th 7am! r... Comment
Aug 03
620923_tn?1436154699
Blank
selmaS, and soccero commented on soccero's status
Jul 31
979826_tn?1389039958
Blank
selmaS, and soccero commented on ChiariWolf's status
Jul 31
Top Neurology Answerers
620923_tn?1436154699
Blank
selmaS
Allentown, PA
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
12573102_tn?1431705217
Blank
Lottida
Thibodaux, LA
979826_tn?1389039958
Blank
soccero
germantown, MD
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1436154699
Blank
selmaS
Allentown, PA
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
12573102_tn?1431705217
Blank
Lottida
Thibodaux, LA
979826_tn?1389039958
Blank
soccero
germantown, MD