Chiari Malformation Community
saw ns today, more frustrated than ever
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saw ns today, more frustrated than ever

Okay, I saw a dr today..very disappointed. He looked at my films and said I had a 1.5mm herniation, when my report cleary states 5 mm (to be fair it is listed like this :
Findings:
1. 5mm cerebellular.....
2. no other remarkable.....
The 1. was numbering the results.
Anyway;, he said this was not causing my symptoms and  there is nothing wrong with my head.  Never looked at my spine (obvious scoliosis). He wasn't rude, but since my herniation didn't reach the C-1 level he said it couldn't be causing my problems. I know I'm positive the the hypermobility EDS..still have pronounced dizziness, head/neck pain/tinnitus/balance problems..he said i should see and ENT and another NL.  
I cried most of the way home (3 hrs..alone).
I expected him to at least look at my spine and test for a syrinx. I started to argue..but why bother?
Am I the crazy one?
620923_tn?1422550960

No indeed u r not the Crazy one there r far too many Drs NS's that have no idea how to review MRI's and interview patients with this condition.

We have dubbed this the Royal Chiari runaround bcuz they brush us off to diff drs......

I had this happen several times until I found my NS that did my surgery,....y bother, bcuz u know something is wrong and one of them was that Dr.
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