Chiari Malformation Community
searching for good research articles / books
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

searching for good research articles / books

Hi,
I have been trying to research Chiari malformation and it's associated illnesses / conditions etc. I feel that i'm at the point of just re-reading the same information and not learning anything new. For those of us who have CM and other conditions, learning about why our bodies behave as they do is very important, as most have had the 'chiari runaround' or are still on the runaround. Frustratingly, too many professionals do not know enough about the condition to treat us effectively. We feel disbelieved by the people who are supposed to be helping us. I really want to get down to the nitty gritty of why it affects us and what is going on in our heads to cause it.
info about any good books or internet articles that are relatively recent would be greatly appreciated.
thankyou
4 Comments Post a Comment
Blank
620923_tn?1416285879

  Hi...have u googled ne of the Chiari  Drs? Like Dr Bolognese, or Dr Oro...Dr Henderson....they all have info on websites...Dr B on TCI's and he has written many articles...same with Dr H, he has a wonderful video that was posted at a walk....and Dr O writes many books and articles.....I think if u start with the Drs names instead of just looking for Chiari info u  may find more of what u r looking for...
Blank
3112631_tn?1356657157
I find this website to be particularly informative. You can read research summaries and they also have very direct, simple PDFs explaining Chairi, which I've found useful in explaining my condition to relatives, massage therapists, etc.
http://www.conquerchiari.org
Blank
1122824_tn?1274110614
Thanks Selma, I will take a look at the docs and see where that gets me.
To czpdx - I have looked at that website and it is good, but I feel like I want to know more than what is on their website, but thanks for the suggestions.
Blank
Avatar_f_tn
What about conferences; are you aware of any?  
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
620923_tn?1416285879
Blank
selmaS commented on ChitChatNine's status
Nov 21
Avatar_n_tn
Blank
Alanjb commented on An Insider’s Guide to...
Nov 20
620923_tn?1416285879
Blank
soccero, and selmaS commented on soccero's status
Nov 19
Top Neurology Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
7530528_tn?1415842914
Blank
AKC_75
TX
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
Chiari Malformation Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
7530528_tn?1415842914
Blank
AKC_75
TX
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI