specialists you can send your film to for an opinion

Hi to all. Looking for some help. My NS I went to today seems to think a 5.7 cm. syrinx is nothing to worry about, even though it's causing me symptoms. Can someone tell me some syringomyelia specialists I can send my film to, so I can make sure he's right. He doesn't even call it syringomyelia. I just want to be sure. Any help is greatly appreciated.

[hdavids]

Hi

I do have syrinx just over 6 cm from Th6-Th10  I got the same answers from my dr. that it is not causing my symptoms and is nothing to worry about.  
So I contacted The Chiari Institute in NY. I sent my reports and a cd of my MRI to them and as I live in Europe I will get an phone conference with them if needed, they do however take fee for it but that was fine by me :)  
I know that here where I live they do not know much about syrinx and what it can do so I took the advice I was given here in this forum and contacted them
Hope this helps

Hdav

[selmaS]

A true chiari dr is the best place to go for syringomyelia as they treat both.

hdavids is correct in that TCI does treat chiari..as do most if not all chiari drs......for more info see our Health Pages-

http://www.medhelp.org/health_pages/Neurological%20Disorders/What-Is-Syringomyelia/show/645?cid=186

"selma"

[STL5]

I too have a syrinx.  The NS I am seeing is not a chiari specialist but he did take the time to listen and was supportive.  His main concern was not the fact that I have chiari with a syrinx but what were my symptoms and how were they affecting my life.  The other thing was whether the symptoms were progressively getting worse, staying the same or getting better.  When you find a NS you may want to have this type of information available so they know how your life is truely changed by this.