still getting new diagnosis ...

We spent the better part of today visiting the doctor.  We are now going to have another MRI done.  We are still being told NONE of his symptoms are related to his chiari and further diagnostics continue to find out what the problem is.  This doctor said the abnormal eeg does have seizure like activity and this doctor suspects Landau Kleffner Syndrome or Autism.  

His head has grown some more and grows quicker than it should.  It is at 50.7cm and was at 50 last month, 49 the month before.  

I will have the opportunity to spend the better part of tomorrow on the phone calling some chiari specialists that people have provided to me.  We're trying to work something out for our little guy!

[selmaS]

  It is not an easy road u r on, and if there is ne way we can help, please let us know....

  The more info u get, and the more educated on all conditions they consider, the better off u r, no one knows ur child more then u.

  Go with ur mom radar....u have that instinct for a reason, trust it.

     Please keep  us posted

  Good luck  tomorrow