Blank
Avatar universal
syringomelia
hi all
i was recently told i have this new wonderful rare condition.
I was told its on my spine c3-c7 what that means i have no idea.
i have loads of headaches pain in back and my left eye is always hurting me ( no idea if this is connected) my arms always are numb and i drop alot of things cause my hands lock, i did have a car-pol tunnel operation which only made it worse. my legs are becoming weaker and the pain is getting worse.
i am on morphine for this which i need to keep increasing.
can anyone please just advise me. i am hoping one day it will just go away.
x
Cancel
1 Answers
1 Answers
Page 1 of 1
620923 tn?1452919248

  Hi and welcome to the Chiari forum...where chiari and syringomyelia r not rare, but well experienced Drs are.

  Were u dx'd with chiari as well? If not is ur syringomyelia congenital or acquired?.....

B4 u had ur carpal tunnel surgery did they do an EMG to make sure this was the issue? I was dx'd yrs ago with tarsal tunnel (ankle) and was told they had this new way of testing for it....was told I needed surgery, I never had it, had a EMG after I had my chiari dx and it was nerve issues and as a result of the first surgery I have nerve damage and had to have another surgery on that ankle....

C3 to C7 tells u how long ur syrinx is, this is a cyst like cavity that fills with CSF, it can be due to a CSF obstruction like chiari malformation , or due to an injury of that area....the larger the syrinx gets it compresses the nerves and can cause perm nerve damage if left untreated for too long.

U need a well experienced Dr in this, most if not all Chiari Drs treat this.....usually it is with a Chiari surgery as it helps shrink the syrinx, and if the syrinx is large enuff they may be able to use a stent or shunt, but that is not always the case.....


Do look into related issues and see about a chiari Dr,

Comment
Cancel
620923 tn?1452919248
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Recent Activity
Avatar n tn
Blank
cracker420 commented on When Your Cold Is Not...
Apr 30
620923 tn?1452919248
Blank
selmaS, and The_Marine_Corp_Brat commented on The_Marine_Corp_Brat's status
Apr 27
Avatar f tn
Blank
Ladytruth01 commented on When Your Cold Is Not...
Apr 24
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank
Avatar universal
Blank
Chiari Malformation Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank
Avatar universal
Blank