Chiari Malformation Community
syringomelia
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

syringomelia

hi all
i was recently told i have this new wonderful rare condition.
I was told its on my spine c3-c7 what that means i have no idea.
i have loads of headaches pain in back and my left eye is always hurting me ( no idea if this is connected) my arms always are numb and i drop alot of things cause my hands lock, i did have a car-pol tunnel operation which only made it worse. my legs are becoming weaker and the pain is getting worse.
i am on morphine for this which i need to keep increasing.
can anyone please just advise me. i am hoping one day it will just go away.
x
620923_tn?1405964489

  Hi and welcome to the Chiari forum...where chiari and syringomyelia r not rare, but well experienced Drs are.

  Were u dx'd with chiari as well? If not is ur syringomyelia congenital or acquired?.....

B4 u had ur carpal tunnel surgery did they do an EMG to make sure this was the issue? I was dx'd yrs ago with tarsal tunnel (ankle) and was told they had this new way of testing for it....was told I needed surgery, I never had it, had a EMG after I had my chiari dx and it was nerve issues and as a result of the first surgery I have nerve damage and had to have another surgery on that ankle....

C3 to C7 tells u how long ur syrinx is, this is a cyst like cavity that fills with CSF, it can be due to a CSF obstruction like chiari malformation , or due to an injury of that area....the larger the syrinx gets it compresses the nerves and can cause perm nerve damage if left untreated for too long.

U need a well experienced Dr in this, most if not all Chiari Drs treat this.....usually it is with a Chiari surgery as it helps shrink the syrinx, and if the syrinx is large enuff they may be able to use a stent or shunt, but that is not always the case.....


Do look into related issues and see about a chiari Dr,

Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
4 hrs ago
620923_tn?1405964489
Blank
selmaS September is CHIARI awarene... Comment
12 hrs ago
Avatar_f_tn
Blank
helpmyblockednose commented on 7 Tips to Breathe Bet...
Sep 13
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Avatar_n_tn
Blank
wonderchiari
7530528_tn?1405298278
Blank
AKC_75
TX
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Avatar_n_tn
Blank
wonderchiari
7530528_tn?1405298278
Blank
AKC_75
TX
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123