Well I have found out that my syrinx is from the top of my neck to the bottom of my neck and its expanding my spinal canal as it is very wide. Doc says greater than average.awesome. 15mm chiari and a worm in my spine ;). I see the surgeon June 6th to schedule surgery. The doc doesn't think that I have eds so thats a plus. This is all such a nightmare!!!
Make sure with the EDS...and I am happy that he at least addressed it, but it should be sure about it....I know a few members that said their Drs felt they did not have EDS pre op and then post op found yes they did, and they found it bcuz they had a set back....make the Dr do all the testing now.
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