Aa
A
A
Close
Avatar universal
tarlov maningeal cyst
has anybody ever heard of this, my son has just been diagnosed with it today???? I have c1m and I am wondering if it has anything to do with it.
Cancel
6 Answers
Page 1 of 1
620923 tn?1452919248

  Hi,,,,,yes we have had many members that had both Chiari and a tarlov cyst and some that had just the cyst after being told they had both.

  These cysts like a syrinx fill with CSF, but a tarlov also is within the nerve root sheath ...so they contain nerve  fiber  inside the walls  and typically are asymptomatic....but this does depend on the size too.....
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1891806 tn?1391122637
Hi. I have been diagnosed with Chiari and Tarlov Cysts. There is a Tarlov Cyst forum for support.

I just had surgery on my cysts on Nov. 6, 2013. There's really only one doctor who deals with this disease...his name is Dr. Frank Feigenbaum. He is in Dallas and people fly from all over the world to have Tarlov Cyst surgery. You can mail him your sons MRI's and he will do a phone consultation for free..however it takes several months.

You can email me directly and I can talk to you about the cysts and what can be done.

Kim
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Avatar universal
thank you for answering this. We had never heard of this. He is 29 and the doctors first thought it was a psyatic nerve problem. but he just got this news yesterday. So he has a dr's appt. on Friday. they told him it is 2mm big. so we are trying to find out all we can.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Avatar universal
can I get the forum info from you, my son would like to get on that. My email is dhooker_92252***@****. thank you for answering our questions. we greatly appreciate it.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
620923 tn?1452919248

  U will have to send a PM ( private message ) to give and get e-mail info
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1891806 tn?1391122637
hookgan09....check your personal mail, I sent you a direct message

Kim
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Recent Activity
Avatar universal
Blank
HannaM91 commented on When Your Cold Is Not...
11 hrs ago
992677 tn?1497486696
Blank
ChiariWolf uploaded a new photo
Sep 24
620923 tn?1452919248
Blank
selmaS September is Chiari Awarene... Comment
Sep 23
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
987762 tn?1331031553
Blank
Australia
1756321 tn?1499064984
Blank
Queensland, Australia
Avatar universal
Blank
Avatar universal
Blank
Trinity , TX
Avatar universal
Blank
Chiari Malformation Community Resources