Chiari Malformation Community
update and doctors seemed worried
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

update and doctors seemed worried

I took Elizabeth to the sleep study doctor today. They scheduled her sleep study for Sunday. They do believe there is a good chance she has sleep apnea. They were also very worried about her symptoms the chiari is causing and thinks she needs the decompression surgery now. They asked why her doctor didnt schedule it. They even called and talked with her neurologist and made an appointment for Elizabeth to see her in 2 weeks. What do yall think? They were just so worried, it makes me wonder about the neurosurgeon.
Thank you,
  Elisha Conway
Related Discussions
6 Comments Post a Comment
Blank
1903798_tn?1333908888
Is the NS a chiari specialist?  If not I would schedule one with a chiari specialist as well.  
Blank
Avatar_f_tn
How do I find out if she is a chiari specialist?
Blank
1925822_tn?1333709217
I just can stress the importance to get a specialist or at least a ns u r comfortable with...there is so much stuff to be taken care of before and after surgery...
Blank
620923_tn?1366319552

  Hi...well when u google the NS's name what comes up as the field of interest?....If it is a long list of Neuro issues this is not a chiari specialist...u want one that has Chiari and chiari related issues and does their own research on chiari.

Where r u located?...r u limited by ur ins as to where u can go?

Blank
Avatar_f_tn
I am right outside of Memphis, Tn.
Blank
620923_tn?1366319552

Oh ok....and is ur NS on the list we have here?....wondering if u can get another opinion?

I understand u may have to look into ur ins...but it may be worth doing at this point.
Blank
Post a Comment
To
Go
Blank
Weight Tracker
Reach your weight goal faster
Start Tracking Now
MedHelp Health Answers
Top Neurology Answerers
620923_tn?1366319552
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Viva001
Chapel hill, NC
1306714_tn?1327260680
Blank
linnielou232
muskegon, MI
999891_tn?1361567064
Blank
rod44
Cork city, Ireland
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
1925822_tn?1333709217
Blank
irislita
RSS Expert Activity
1741471_tn?1349564002
Blank
Parkinson Awareness Month: Parkinso... Blank
May 10 by Michael Gonzalez-WallaceBlank
233488_tn?1310696703
Blank
NEW STUDIES ON PREVENTING PROGRESSI...
May 08 by John C Hagan III, MD, FACS, FAAOBlank
2126606_tn?1346348724
Blank
Heroin Use in the U.S.
May 08 by Clare Waismann Kavin, Blank