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update and doctors seemed worried
I took Elizabeth to the sleep study doctor today. They scheduled her sleep study for Sunday. They do believe there is a good chance she has sleep apnea. They were also very worried about her symptoms the chiari is causing and thinks she needs the decompression surgery now. They asked why her doctor didnt schedule it. They even called and talked with her neurologist and made an appointment for Elizabeth to see her in 2 weeks. What do yall think? They were just so worried, it makes me wonder about the neurosurgeon.
Thank you,
  Elisha Conway
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1903798_tn?1333908888
Is the NS a chiari specialist?  If not I would schedule one with a chiari specialist as well.  
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How do I find out if she is a chiari specialist?
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1925822_tn?1333709217
I just can stress the importance to get a specialist or at least a ns u r comfortable with...there is so much stuff to be taken care of before and after surgery...
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620923_tn?1452919248

  Hi...well when u google the NS's name what comes up as the field of interest?....If it is a long list of Neuro issues this is not a chiari specialist...u want one that has Chiari and chiari related issues and does their own research on chiari.

Where r u located?...r u limited by ur ins as to where u can go?

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I am right outside of Memphis, Tn.
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620923_tn?1452919248

Oh ok....and is ur NS on the list we have here?....wondering if u can get another opinion?

I understand u may have to look into ur ins...but it may be worth doing at this point.
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