update since new rounds of testing

[kwalker0004]

Update since I got all my new test and reports back and saw my NL in Maryland. He recommends surgery to relieve my pressure build up. He says I have CSF blockage but there is no present sphrinx in spinal column. Though he is afraid that if iI dontdon't cut back on my activities there could be one in a few months. As it looks to be one forming in my T3. I'm guessing that means its forming in the area of my thoracic vertebra number 3. He asks when I go back to the Mayfield Clinic I said in November. He doesn't seem to think that the surgery would cause anymore problems in my basilar invagination but the NS thinks I should just do both surgeries at once. But since neither of them are my not my choice of doctors, I will be waiting until my appointment back at the Mayfield clinic to confirm this information. So I guess until then I will be taking it as easy as I can. I'm glad I don't have any other condition related to this condition. So maybe I will be able to not stress as much. He gave me another medication and decided to take me off of Topamax. But I'm going to take the meds until I talk to my doctor at the Mayfield Clinic before I hit taking it. As Topamax seems to help when I'm not stressing or having problems.

So for now I'm going to relax and do some more me time. Though I don't know how long that will last. But I hope I will be able to cut back even though I doubt it. I will try at least. I will have my animals to keep me from doing so much as they love to cuddle and hates when I get up. So they will love the extra attention. So that's it for now.

[kwalker0004]

Yes I hope the drs in Ohio also agree. I hope rather sooner than later. We will see. I just bought a whole bunch on yarn guess I will be doing a lot of knitting and crocheting over the next couple of months. See what other creations I can come up with. My furbabies will take care of me. So I will let everyone know as soon as I hear from drs in Ohio. But I'm glad I got these answers and if surgery is the way to go I will just have to get over the nerves and not be scared. I know I have a whole bunch of support from you and the rest of this community as well as my loved ones. Thank you for your concern.

[selmaS]

  Thanks for the update....I was wondering how you were doing .....

Glad you have some more answers and ideas as to which way to go, I hope your other Drs agree and make the next step all the more easier for you to decide on....

I pray you are able to rest up and not do too much and love on your furbabys....