updates and prayers

[TinyRN]

So its been a while since I have posted. After my last MRI I was left with the fluid build up in the back of my surgical site and fighting with my NS to see me and my NL because of my symptoms that rapidly came back and new symptoms that started up with my vision that was becoming blurred and dizzyness that was kicking in again. I finally was able to see my NS and they scheduled a CINE MRI while I was down there which I have yet to get the results back but he believes that the fluid is just a seroma and that it is not a spinal leak. However, I am a bit suprised becaused on my previous MRI they ruled out this "Addendum" that labeled me to have a pituitary mass and when he sat down and read off all my impressions of my previous MRI's from start to finish it has always been there. I almost lost it. He has never told me about this the entire time, And neither have my other doctors until a year post op and I had to have his specialist review it and they said its definetly there. So they believe all my symtpoms are not my Chiari but in fact the pituitary tumor/mass. I am at a loss for words. My headaches are so bad from one end of my head from the Chiari and now the other end from this. I meet with this other doctor at the end of the month and I pray its not the "C" word because the have known about this for over a year and did not tell me to have it even looked at. I know this groups prayers go a long way and I really could use some right now.

[Jm_smalformedbrain]

Prayers and thoughts for you. I too have a pituitary tumor but it's not producing any hormones right now and no suspicions of malignancy. That could change as the years go by, but, for now it's a macro adenoma. So, try and stay calm. Our minds always tend to wander to the worst. Take a deep breath and think if it is malignant, they'll operate and it'll be fixed! If it's not, you'll now have another intruder in your brain and call it chiari's evil twin lol. I have an excellent NS if you need one here in Arkansas.

[Elisaandbucky]

I am continuing to think about you.

[Mel5056]

Oh geeze lady i am so sorry you now have this added stress. So happy you forced him to get all the appts for you.  How dare he withhold such important info.  How did he justify it?  That is wrong on so many levels.   Grr some docs blow me away.  Please keep us posted.  Big hug and many prayers

[AnnieDear]

I, too, have a very small pituitary mass. I was told they are usually benign and nothing to worry about. I will pray for you that yours is also nothing to worry about. Hopefully it will provide you with some answers, though! I know that's often the worst part for me - the not knowing.

Best wishes,
Annie

[Elisaandbucky]

I am thinking about and saying prayers for you. Love your little boy while taking car of yourself also. My circumstances are similar. I know my 17 year old son really wants more of me. He is autistic and intellectually challenged, and I am his "big strong mama" without her usual strength. You should know hat you are cared about and prayed for

[TinyRN]

thank you so much for your comfort. I just have been in a lot of stress the last couple of days because of this news. my sister passed two years ago after dying from brain cancer. I am only 26 and I have a 19 month old son. So, its really depressing dealing with so much backlash of medical issues within the past year. I forced my doctor during my last visit to schedule all of my appts because i have been asking my NL for appts for a geneticist to test me for EDS because of that possible leak and the new murmur because i know there are different grades and she keeps saying oh yeah ill look into it and keeps forgetting so I had it and after hearing all that down there I told him I want all these appointments and I want them now. I am so tired of feeling sick though and not being able to spend time with my son the way that I want its very depressing

[huskerfan71]

I too have a pituitary tumor.  I have discovered that the majority of them are benign and just a nuisance.  Mine is considered a macroadenoma because of its size ( I can't remember the measurements).  There is some chance that eventually it will have to be removed, but for now it's staying.  
So try an relax and don't panic until you have some definite answers.  I know...easier said than done.  I was freaked out too.  But I was comforted in knowing the vast majority are benign.  
Have a great day and keep us posted!!

[selmaS]

  Hi sweetie....I am so sorry that they knew and did nothing for you...Prayers being sent your way....
          please keep us posted on your progress <3

[frankie_rush]

You got mine.  I pray everything turns out good for you.