Chiari Malformation Community
upset
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

upset

Hello.   Well just want to know if anyone else is in my situation.I was told I have Chiari about 9 yrs ago.And been bounced around to a couple Dr.s who don't seem to know much about it.I also been diagnosed with Fibro.Well anywas the only thing that hs worked for me is pain meds.Well now my Dr. Is saying that treating Chiari with pain meds. Is not right,and wants to try the same stuff we have tried before.wtf? Very frustrating that they say pain is not a part of Chiari and act like the symptoms I'm having are not right.
Related Discussions
620923_tn?1439824912

  Hi and welcome to the Chiari forum.

What u r dealing with, we have dubbed "The Royal Chiari Runaround"....the problem is u have Drs trying to help that have no idea what chiari is, or how it affects u.....U need a true chiari specialist.

Meds do not work, as this is a neuro issue and the problem is chiari causes the cerebral tonsils to herniate, these tonsils can cause a CSF obstruction which is where much of the pain comes from ....surgery is done for those  with chiari and an obstruction to restore flow and slow progression of the condition...

Many with Chiari have related conditions as well and should be tested b4 they have surgery as some can affect recovery.

We do have a list of Drs, they are the names of the members drs, the list is not a referral, but a means to help u get started researching drs so u can find the right one for u.....http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

   U r not alone in ur frustration....

    "selma"
Blank
Post a Comment
To
Recent Activity
Avatar_n_tn
Blank
AlissiaBreitenstein commented on 7 Tips to Breathe Bet...
1 hr ago
620923_tn?1439824912
Blank
selmaS September is Chiari Awarene... Comment
12 hrs ago
620923_tn?1439824912
Blank
selmaS commented on soccero's status
13 hrs ago
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
7489440_tn?1422931913
Blank
kwalker0004
Pocomoke, MD
979826_tn?1389039958
Blank
soccero
germantown, MD
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
7489440_tn?1422931913
Blank
kwalker0004
Pocomoke, MD
979826_tn?1389039958
Blank
soccero
germantown, MD