Chiari Malformation Community
vanderbilt doctors
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

vanderbilt doctors

Hi,
I'm new to this site and need a good doctor at Vanderbilt in Nashville TN who does Chiari surgery. Any suggestion?
Related Discussions
8 Comments Post a Comment
Blank
620923_tn?1405964489
Hi and welcome to the Chiari forum.

Does  ur dr have to be at Vanderbuilt?...There is a dr listed on out thread  that is in Nashville.....Dr Hamp....not sure on the spelling...see the list of chiari specialists....BUT please research all drs to find the one right for u.

We have several members that have had their chiari surgery by this dr in TN.....and I am sure one may offer info on him.

I am happy to welcome u to our little family here , but sorry for the reason u had to seek us out.

"selma"



Blank
Avatar_n_tn
HI;

They have finally figured out a diagnosis and it is Chiari malformation.  I live in TN and would love to find the name of the doctor in this state.  I am in the same boat having had symptoms for years.  

Help?
SharonP
Blank
620923_tn?1405964489

  Hi and welcome to the Chiari forum.

  We do have a list of Drs, the list was compiled by the members here, and is not meant as a referral, but as a means to help u with ur research of drs.
.http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186


Make sure the Dr is a true chiari specialist and checks u for related conditions b4 u decide on surgery...as those other conditions can affect recovery.'

   "selma"
Blank
Avatar_f_tn
My son had Chiari surgery in 2010.  Over 2011 headaches slowly came back and as we entered 2012 they became debilitating.  We've been told ALL Chiari patients also have some sort of heart defect (my son has a VSD). Dr.'s believe headaches are related to VSD, not getting enough oxygenated blood to his brain. Anyone have any info. On this?
Blank
620923_tn?1405964489

  Hi and welcome to the Chiari forum.

Not sure who told u that, but it is not true, I had my heart checked out b4 I had my surgery and I do not have ne heart issues....

What they may have meant and said incorrectly is many with Chiari may have related conditions like POTS, or Ehlers-danlos*  and some of these other conditions  may affect the heart...with EDS* there are several types one being vascular and it can affect the heart....mitral valve prolapse I believe is what it is called...POTS is an Autonomic Dysfunction u may have blood that pools in the extremities, Raynauds Phenomenon, BP issues, heart rate issues....

  But not all with Chiari have these issues.


Symptoms
VSD is an acyanotic congenital heart defect, aka a Left-to-right shunt, so there are no signs of cyanosis.

Cyanosis is the appearance of a blue or purple coloration of the skin or mucous membranes due to the tissues near the skin surface being low on oxygen.

Signs
Pansystolic (Holosystolic) murmur (depending upon the size of the defect) +/- palpable thrill (palpable turbulence of blood flow). Heart sounds are normal. Larger VSDs may cause a parasternal heave, a displaced apex beat (the palpable heartbeat moves laterally over time, as the heart enlarges). An infant with a large VSD will fail to thrive and become sweaty and tachypnoeic (breathe faster) with feeds.
CAUSES: The cause of VSD ( ventricular septal defect) includes the incomplete looping of the heart during days 24-28 of development.
Blank
620923_tn?1405964489

  Bumping up
Blank
Avatar_m_tn
My mother had Dr. Cheng at Vanderbilt do a decompression surgery in November of '07.  He was very good and did four others that day.  She had a very good result from her surgery.  She had a 9 mm chairi herniation with a 154 mm srynix.  Because she was missed diagnosed for so long she had some perminate damage to the spinal cord, but a lot of her symptoms are relieved.  I now have been diagnosed and am trying to find a doctor to do the surgery.  If Nashville weren't so far away, I would have him do my surgery.  
Blank
620923_tn?1405964489

  Hi and welcome to the Chiari forum.

May I ask where u live, what area?  Do use the list in the Health Pages to research Drs possibly in ur area.....many of us od have to travel to get to a good Dr, so if u know of one, that is where u may want to travel to, as long as he works with ur ins.
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
9931813_tn?1406746748
Blank
Jeannean_ChiariMom, and selmaS commented on selmaS's status
4 hrs ago
9906907_tn?1406604905
Blank
shushil commented on Attention All Mouth B...
Jul 29
Avatar_f_tn
Blank
Alex1872 commented on When Your Cold Is Not...
Jul 28
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH