weather change??

hello everyone,i can't believe i found a "facebook" for chiari! i was diagnosed with a tonsillar ectopia 13 years ago when i had a t.i.a ,the doc said it would get worse eventually,i have had 9 tia's all together now,and was diagnosed with a chiari,i had a mini stroke feb.2009 and have had a headache everyday since,sometimes unbearable,there isn't any good neurologists around here,everone i've seen say it isn't bad enough for surgery,it is about a 5 " ,they say it has to be a 8" before they will operate,so i have to live with the pain and other symptoms.the weather is the worst,
everytime the air pressure changes i feel it in my head,i can tell when it's gonna rain or sotrm by the pressure in my head,my friends all think i'm crazy, but i noticed since it's getting colder my legs are hurting worse,i had to crawl upstairs the other day my left leg hurt so bad,and this is the first time it has bothered my left side,it has always been on my right side. so you tell me ,am i losing my mind or is this normal for a chiari patient?

[Stephiec79]

I think we all feel like we're losing our minds...which I'm finding is normal for a Chiarian : )
So, no, you're not losing your mind...you're finally "surrounded" by people who finally understand all the things that other people around you don't understand!

[selmaS]

Hi and welcome to the Chiari forum.

Most of us r walking barometers.....I have always felt the changes coming on...be it weather or a season change......

And the  cold does make me hurt as well......last winter I got a pair of EMU boots they r like UGG boots and keep my feet warm so they do not hurt.

And like Steph said...u r not crazy or we all r : )

"selma"

[lu7997]

i can predict an atmospheric pressure change almost as good as the forecasters......I haven't been wrong yet.   I hate the ups and downs in one day the worst  that always makes for a very lousy day.  Cold gets me the worst i am dreading the evil ohio winter to come......

you are not crazy at all this is scientifically proven.....sorry my chiari talks for me most days so dont quote me please...but you are made up of so much water that you hold an internal pressure of so many mmHg and the outside pressure is changeing all the time   well in a normal person your body responds by producing more csf for low pressure and less for high  well if you have a blockage as Chiarians do on the low pressure days that extra CSF can put you over the top since you can't distribute it as your body is meant to.   if that makes any sence.....


good luck

[angelways]

makes great sense,thanks,i used to live in ohio,you have terrible winters :{
do you have a chiari specialist in ohio?

[n40066]

if you have ever broken or fractured a bone, you will also know!  i can still tell even after my surgery, but it is in my spine!

[angelways]

YEAH I CAN TELL BY THAT TOO,I BROKE MY LITTLE TO BEFORE AND WHEN ITS GONNA SNOW,IT CURLS UP UNDER MY OTHER TOES,HURTS REAL BAD!