Aa
A
A
Close
1235103 tn?1267818963
what color is the ribbon for chiari?
Ok i have seen 2 colors for the chiari support ribbon, does anyone know the correct color?
Cancel
24 Answers
Page 1 of 1
1041839 tn?1278685446
Chiari ribbons are purpose to be purple. And teal blue is for syringiomylia (i never spell that right) If you have seen the one thats teal blue with a zipper it was created by TCCF and they call it the global chiari awareness ribbon. That is the only one for chiari that is not purple.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1179332 tn?1297482590
Ha ha that one was quite the debate on FB...pretty scary actually.

Like Shannon said the official one is purple....but I like them all!! Anything that promotes awareness is good to me!

Carolyn
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1041839 tn?1278685446
Yeah, carolyn there was a little drama on fb over that Lol I like them all too but i think my favorite is actually the CM/SM teal and purple yin-yang ;~)
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248
I vote purple...lol......it gets so confusing when they change them around......as it is  fibro is also purple and many other conditions....but how will it get recognized if we keep using diff colors?

Which one won on FB?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1235103 tn?1267818963
Thanks everyone..I am making my own purple ribbons for friends and family to wear next friday when our ds has his surgery..
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248
That is such a neat way for them all to show support : )

I will wear mine too.....going forward when a member has surgery I will wear my necklace...I encourage all to do the same....

Love this show of support and it will bring awareness too.

"selma"
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
I did not know that there was a support ribbon for Chiari. I think what would be great is if when one of our friends here was having surgery, or one of thier family members we could all wear the purple ribbon in support.
Is it just a purple ribbon, or does it have a pin or something with it. Sorry I don't know, but I don't get on the computer much except to check this sight and do my homeschool research for DS.
Hope today finds you all well.
Barb :)
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1179332 tn?1297482590
Selma...not sure who won..lol

I think most of us were like...whatever gets the message around (this was part of the little thing I was telling you about)

Where did you guys get your pins and ribbons from? I think that is a great idea...actually I would love to get something to put on my car too.

Carolyn
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248
A member here made a necklace for me...I have a pic in my profile page with my pics from my PFD......I had it a yr b4 my PFD so I had mine quite a while.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1069888 tn?1421940341
I say, why change it...?  Really?  If it was and has always been purple... why make it teal?  Now for those of you who have CM & SM, the dual color one makes sense!  100%!

I agree that all awareness is good awareness, but really.... what is the purpose for making a change like that?  I just don't understand.  I DO, however, appreciate the awareness... nonetheless.

Confused...
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1041839 tn?1278685446
Lori, thats what bothers me the most about it is confusion! I feel like it needs to be one color so everyone knows what it stands for. I'm all for awareness any way we can get it (except bad) but this "new" teal ribbon is causing a lot of confusion. Chiari groups have been using purple ribbons for 15 years (that i'm aware of it may be longer) so why change it now? Sorry didn't mean to rant, just my opinion. Shannon
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248
Shaonnon......I think it is 20yrs....not quite sure, but I think so.....but I agree, it is confusing as to what it is for....so I like the one's with the zipper added.....to the purple : )
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
392282 tn?1301537432
The color for syringomyelia is BLUE.  The color for Chiari is PURPLE.

Teal/Turquoise fit no where in the equation.

TCCF is a criminal organization and their ribbon is just a billboard for their lack of ethics.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1896924 tn?1321380641
The one with the zipper means you have had the surgery, The purple is supose to be chiari awareness, the teal color is global chiari awareness. If you are going to do bracelets i would use purple unless you are planning to send them global, i wouldn't use the zipper i would probably let them ask what the cure would be and as we all kknow brain and neck surgery is the only way and sometimes it doesnt cure it all just lessens the sevarity of the symptoms.  I hope this has helped if you have more questins please feel free to contact me on face book. Dawn marie Davis, Cordell, Oklahoma
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  No the teal is for a chiari org that was shut down...do not get suckered into that one.....

The color for chiari global or not is purple.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
I have acm and I underwent brain surgery for it in 2010...I am now pregnant for the first time and I'm so worried it will pass on to my baby....any comments or suggestions about this?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248


  Hi and welcome to the Chiari forum.

U may want to use the search this community feature to see other posts on chiari and pregnancy,.....it is recommended that u have a C-section when u have chiari . The strain of natural childbirth is not good for us and will trigger symptoms.

  For more replies u may want to start a new thread with the topic  is Chiari hereditary.....

   There is research going on as to how this possibly is being passed on, but with the # of members with other family members having the same condition it looks like it is leaning toward hereditary.

  Do make sure ur OBGYN knows u had chiari surgery.

      "selma"
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
392282 tn?1301537432
AGAIN...

The Teal is a billboard for FRAUD and an organization that was shut down not once but twice.

Pink is the color worldwide for breast cancer, the color for Chiari doesn't change because of global... that's just the dumbest thing I've ever heard.

And a lot of us embrace the zipper regardless if we have had surgery yet or not.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

Thank you TSO...
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
Is there somewhere I can buy the a ribbon like the one you are showing with the zipper? I love that. My granddaughter whom I'm raising just had surgery. She is 19 months.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1903798 tn?1333908888
I still have purple ribbons painted on my toes too:) I am much more fond of purple now that it has a special meaning to me:)
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  Hi and welcome to the Chiari forum.

There are sites on the web where u can buy the ribbons, however, u do have to be careful as there are several sites looking to bilk monies from us  and they claim it is going toward research when it is not...it is only going in their pockets....

I do have a friend that made  some jewelry and I may b able to get hold of some for an upcoming walk in May...if u r still interested I will look into getting these for u and make sure it is a reputable org.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1306714 tn?1327260680
I would be interested in this also.  So please keep me in mind :)
Have a wonderful day
Linda :)
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  I will ...as soon as I know what we will have at the walk in May I will let u all know what is available.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Recent Activity
Avatar universal
Blank
5665 commented on Think LYRICA was culp...
Jul 21
620923 tn?1452919248
Blank
soccero, and selmaS commented on soccero's status
Jul 11
979826 tn?1389039958
Blank
soccero feeling absolutely horrible ;( Comment
Jul 09
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
1306714 tn?1327260680
Blank
muskegon, MI
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
979826 tn?1389039958
Blank
germantown, MD
Avatar universal
Blank
Chiari Malformation Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1463449675
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
1306714 tn?1327260680
Blank
muskegon, MI
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
979826 tn?1389039958
Blank
germantown, MD
Avatar universal
Blank