CLEIDOCRANIAL DYSPLASIA

I have a friend who has a daughter diagnosed with CLEIDOCRANIAL DYSPLASIA. She has 3 girls & 2 boys only one has been diagnosed.
She is pregnant again and is concerned about this. She can find no information. Is there someplace to go or call for information?
Thank you for your time.

[Kevin Kennedy, Ph.D.]

This inherited disorder affects the development of bones and can include an absent or not completely formed collar bone, dental abnormalities and facial appearance often typified by protruding jaw, wide nasal bridge, and poorly aligned teeth. The disorder requires that only one parent has the trait, and the risk of recurrence is 50%. If your friend conducts an internet search, she will find a number of web sites devoted to the condition.