My son's condition

Last year, I gave birth to a perfectly healthy baby boy named Jacob. After about a day, maybe less, he began to have seizures. He was flown to UCLA and we spent nearly two months, testing everything. But no one could pinpoint a thing. One cold doctor told us flatly, "Your son is brain damaged." I cried but I am more grateful that it wasn't something more serious, that he was alive. My husband, Dan thought this doctor was just a jerk. Which he was. Jacob finally came home at two month and my doctor told me formula might be better for him than my breast milk. At five months we learned Jacob was very nearsighed and required glasses. These have been impossible to keep on. He cried and cried. Finally, he smiles and he makes noise but it doesn't sound like normal baby babbling. At one year, he has no interest in his surroundings. He looks around but if you try to play with him, he seems dazed. He has one lazy eye. I bought him a play mat recently (its made for six month olds) and he seemed to like staring at himself in the provided mirror. At nearly 13 months, he still drinks formula and suffers gastrointestinal problems (constipation...). One of the tests showed that the fibers in his brain were smaller than normal and that he had never seen anything like it. I am not sure what that means? Anyone with similar experiences?

[margypops]

Sounds like Jacob, love that name , is doing okay inspite of the difficulties he has , like the lazy eye, maybe can be fixed later, have you tried giving him finger foods or Cereals, yoghorts , the formula could cause the constipation . I see you are new here to Med help , I am going to suggest to you that you aswell as the  input from this forum, go back to the forums page and look to the right you will see the expert/ Doctor forums , I think you may get some further  help there ..Good luck  

[SeriousSam]

So basically the myolin sheathe is not as well developed, if I understand you correctly?  Try the Mayo clinic and also, though I believe the chances are slim to none you may want to check some research by physicians doing research in nuerological development, MS, and Alzheimers.  Anything that may be used as treatment is likely to experimental.  Also if you have a syndrome name write pharmacuetical companies doing research.

[specialmom]

Hello.  Well, the first thing I would do is talk with your pediatrician about a birth to 3 program that all states have.  It goes under different names------ ours is "help me grow".  Through government grants, they help assess the needs of a child identified as having any developmental delays.  They will coordinate what types of things need to be done and help with paperwork and expenses.  Speech (which for little ones isn't so much about talking as it is feeding.  Speech starts in infancy), physical therapy, occupational therapy, etc are all a part of it.  They can do so so much to help children these days.  

So, I'd confer with your physician about what the program is called in your state and start there.  Then I'd look into possibly seeing a developmental specialist and getting started with therapy to help your child grow.  No matter what the origen, many things can  look the same in a child and you can use those methods to help them.  My son has a developmental delay called sensory integration disorder, for example.  But I researched autism and use things that are used for autistic kids to help my son.  "Story books" for example----  to teach certain concepts and things have been helpful.  

Another awesome resource are children's hospitals.  They have services obviously to help with child development but also support of family.  

Good luck and I wish you and your child the best!