18 month old having hip pain

[first time grandmother]

Granddaughter has had hip and leg pain on the right side.  She started limping and crying with pain about 2 months ago. Doctor did a bone scan, lab work and x-ray.  Sed rate was 25, then 30 then 35 the last one read 1.  Nothing showed up in the x-ray or bone scan.  The limping and pain got better for about 2 weeks, until this week and now she can't stand sit in a car seat or bend certain ways, she is limping and falling and when she sits for any length of time she can't put any weight on her legs and they tremble for about 5 min. After they quit trembling she can walk but holds the left leg stiff and doesn't bear full weight on right leg.  She goes to se a RA doctor next week but I have RA and I don't think that is what is wrong.  Any suggestions?  THey have ruled out anything being wrong with her hip joint or stress fractures.  

[rw310]

My son had transient synovitis of the hip at around age 4 with some of the same symptoms. Google it and see if the symptoms fit.

[mariehiscox25]

sounds like duchane MD my husband had muscular dustrophy and our friend has that one. google it and alot will come out to help you
best of luck