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9 year old With Variant form of Galactosemia

9 year old With Variant form of Galactosemia

As a newborn my son was diagnosed with a variante form of Galactosemia (Duarte). I immediaty stopped breast feeding and then put him on soy formula. We had his levels etc. tested until he was 3 years old and all looke good. We then introduced dairy products. And he seemed to do fine. My concerns are 1. That he is extremely skinny at age 9 . He does very well healthwise except that he has incredibly foul smelling flatulence issues. All of his friends, teachers, bus drivers etc. have shown concern. He doesnt have any kind of cramping or stomach problems along with the flatulence.
Could he have an intolerance to sugar/sucroseor wheat since it relates to galactose? We also have wondered about Celiac disease, is this common for people with galactosemia to have?
Any help or advice you have will be much appreciated
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I think that you will get better information if you go back to the forums page and post this on the expert /doctor forums ,it does sound as if he has some intolerance going on.good luck sorry I cant help you more .
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