Children - Special Needs Community
Donnai barrow
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Donnai barrow

Hi I am a grandmother of a very special little boy and new to this forum I wonder if anyone out there has a child with donnai barrow syndrome
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Hope you get some response if not try the other child forums so your query gets a wider circulation,and  the Doctor Forums , Family medicine Forum Good Luck
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Hey there. I'm afraid I don't know about donnai barrow syndrome, but there are a lot of people on here with children with other special needs. We might not be able to help out with specifics, but we can certainly offer some support and encouragement. ;D
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thanks to margypops and RebeccaL sorry for not getting back I'm sure I have lots in common with others as Deacon has varied disabilities
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My daughter has two mutations in the gene that causes Donnai-Barrow.  She is 5.
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