Avatar universal
Donnai barrow
Hi I am a grandmother of a very special little boy and new to this forum I wonder if anyone out there has a child with donnai barrow syndrome
Cancel
4 Answers
4 Answers
Page 1 of 1
535822 tn?1443980380
Hope you get some response if not try the other child forums so your query gets a wider circulation,and  the Doctor Forums , Family medicine Forum Good Luck
Comment
Cancel
535822 tn?1443980380
Comment
Comment
Submit Comment
696153 tn?1231609458
Hey there. I'm afraid I don't know about donnai barrow syndrome, but there are a lot of people on here with children with other special needs. We might not be able to help out with specifics, but we can certainly offer some support and encouragement. ;D
Comment
Cancel
696153 tn?1231609458
Comment
Comment
Submit Comment
Avatar universal
thanks to margypops and RebeccaL sorry for not getting back I'm sure I have lots in common with others as Deacon has varied disabilities
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
My daughter has two mutations in the gene that causes Donnai-Barrow.  She is 5.
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Children - Special Needs Community Resources