Seeking feeding therapy finacial help

I have a 2 and a half yr old son Nathan, at 10 weeks he was diangosed with cystic fibrosis. He's had a feeding tube since he was 6 months old and a Nissen surgery. He stopped eating at 10 months during a traumatic hospitalization. He hasn't eaten/swallowed any solid foods for over 1 and a half yrs. I have a good therapist for him, but because of finances we haven't been able to have therapy for him since Feb.
Now we a have met our deductible on our insurance, but we need to have the therapy 2 x a week consistantly. Does anyone know of any feeding assistance grants, foundations, organizatons or even a ministry that might be about to help us?
Please let me know.
Thank you for your help,
Lesli

[MeganW]

Depending on the state you live in, your son should be receiving early intervention services. These are free, and include every type of therapy (as long as there are therapists in the area). Contact your state or county, and ask about what services they offer.

[[e-mail]]

I would also check out early intervention. Also he should be eligible for some social security assistance if you are below the income guidlines. I live in MA we have Masshealth insurance My son is blind and has had the insurance  since 1 or 2 years old.   My grandaughter has a rare blood disorder and she gets it.
good luck and god bless

[LukeL]

He should qualify for SSI, and your  states medicaid program. There are also dozens of other sub programs within the ones above for people with very speical or specific needs. Also having him qualify for disabilty now will make him eligible to collect off of your's or your spouses soical secuirty when you reach the retirement age.

[GI mom]

Early intervention programs do cover until the age of three.  Most are state regulated.  Since you do have a clinical diagnosis, you should qualify for a long term care program such as DDD (division of developmental disabilities) and SSI (social security).  Your insurance has case managers who should have this information or the hospital where your son is cared for has social workers and case managers to help enroll you.  Ask your pulmonologist also about local support networks for CF you would be suprised how much the parents can network and get you in contact with the right people.  If you do not live in a big city I would visit one with a good hospital to connect with.  Being networked in to a good system is key!
Best of Luck

[swimtherapy]

ask about Swim Lessons in salt water pool!!!! ask your doctor. Brian ***@****

[mommytime]

I think the ppl above had said it right, good luck an plz make sure you check into SSI, everything you will ever need will come from what SSI can bring. also look into DDD, talk with your DR or the hospitals social worker she is an awesome resource

[Raynbow]

When my son was in Speech Therapy for feeding issues, I didn't qualify for SSI and my insurance wouldn't pay anymore. I signed a waiver at the speech therapy for Scottish Rites (kind of like Shriners) and they paid for it! Good Luck!