Children - Special Needs Community
body jerks or severe twitching
About This Community:

This patient support community is for discussions relating to learning and education, motor and movement, neurological brain injury, premature birth, sensory integration, speech and communication, and vision impairment list groups.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

body jerks or severe twitching

i have a 2 1/2 yr. old daughter who was diagnosed with a rare disease called metachromatic leukodystrophy....she has only had 1 seizure that we know of, but i have been very concerned about these "body jerks" or "severe twitching" during her sleep! PLEASE HELP!
3 Comments Post a Comment
Blank
Avatar_f_tn
Hi there
My 14 year old daughter has just been diagnosed with metachromatic leukodystrophy.  Did anyone respond to your post and what did you find out about this disease?
Thanks
Blank
Avatar_f_tn
Hi

You may find the following sites useful:

http://www.emedicine.com/ped/topic2893.htm

http://groups.msn.com/leukodystrophyfamily

I hope this helps

Blank
Avatar_n_tn
Hi, Please check out the site below. Here you will find much information and support from people who know much about MLD. My granddaughter had it and I found it to be extremely helpful.

http://www.mldfoundation.org/
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Children - Special Needs Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Children's Health Answerers
4851940_tn?1385441629
Blank
jemma116
United Kingdom