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body jerks or severe twitching
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body jerks or severe twitching

i have a 2 1/2 yr. old daughter who was diagnosed with a rare disease called metachromatic leukodystrophy....she has only had 1 seizure that we know of, but i have been very concerned about these "body jerks" or "severe twitching" during her sleep! PLEASE HELP!
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Hi there
My 14 year old daughter has just been diagnosed with metachromatic leukodystrophy.  Did anyone respond to your post and what did you find out about this disease?
Thanks
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Avatar_f_tn
Hi

You may find the following sites useful:

http://www.emedicine.com/ped/topic2893.htm

http://groups.msn.com/leukodystrophyfamily

I hope this helps

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Avatar_n_tn
Hi, Please check out the site below. Here you will find much information and support from people who know much about MLD. My granddaughter had it and I found it to be extremely helpful.

http://www.mldfoundation.org/
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