This patient support community is for discussions relating to learning and education, motor and movement, neurological brain injury, premature birth, sensory integration, speech and communication, and vision impairment list groups.
Do you have a home care provider (PCA)? Your insurance should be able to provide you with one, especially if you have disability insurance through the state. You shouldn't have to do this on your own. Definitely speak to his doctor about your options and strategies to work with this new development.
I also agree with Annie that it may be time to start looking for a home for him. The U.S. has some great ones. You have invested 26 years of your life into your child (which I think is wonderful), but maybe it's time to get more help so you can live your life. He will also be happier if he is in a place where his needs are being fully met. Good luck.
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