This patient support community is for discussions relating to learning and education, motor and movement, neurological brain injury, premature birth, sensory integration, speech and communication, and vision impairment list groups.
hey michelle here i am a bit upset right now my son just went to A peadiatrician and they said hes 8 months behind hes now 13 months old they said his head isnt growing as it should and he has to have a brain skull scanto see why in a years time .how long do kids live for with these kind of problems hes not weight beiring eather not walking or cvrawling hes very important to me i want for him to live a happy life .hes also getting bloods and urine done.but he seems alert bysides all these things what happends if there head grows slower than normal.
his legs are starting to weight bare a bit now i hold him under arms and he stand jumps for a about 2 minutes they cant figure what is wrong with him bitearly to tell they did said his head circunstance is growing slowley though.thats ok ask anytime u like about him im trying to figure him out too.
Is his height and weight below normal as well? Were you preterm giving birth? Was your pregnancy normal or were there any complications? These are all questions that my daughter's developmental pediatrician asked us. Her head size is normal, but she has developmental delays so hence I know all the questions they ask or try to assess.
There could be lots of things the doctor should be checking in addition to having a brain scan. Not sure if the age of your child is too young for them to want to expose them to a brain scan... I don't know if there's like radiation or something. Or maybe they don't think at this point it would give them any accurate indication of anything? Hopefully the bloods and other tests they are doing will help pinpoint something. I don't think small head size causes death. But it could indicate that he will have developmental delays. Just keep on top of the doctors. It gets frustrating. My daughter didn't crawl until 12 months and she walked at 16 months. She didn't say her first word until 28 months and at 32 months we saw her developmental pediatrician again, and I requested a report summarizing everything from the last few visits... and at 32 months old, they say her mental and physical age equivelant is 23 months old.
I know sometimes it's hard to hear that your child has issues or a disability or something wrong with his health. Ask his doctor as much questions as you can, even if you are afraid of the answers. If you are concerned about life expectancy, ask the doctor outright if he feels that this might be something that could affect his life. And don't compare your child to other children. I've gone down that road, and it is depressing and not fair to your child. He'll do things in his own time, and be proud of him for when he does them.
Hang in there.... and keep posting... I find forums to be great places to find people who understand your situation and will hear what you have to say.
thanks for that that really helped u lomg message i dont compare him to other kids he does say nana mum dad good and also hes had his bloods done yeah he does things in his own time just waiting to hear now. i know it can be scary to see what they find he had a muscular dystrophy test and i hope every thing is done alright
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